I had ORS removed last year. That was a success. Took too long to get it diagnosed though so I went to a specialist. It can usually be removed. They use TVS, US, and estrodiol tests. Mine showed up and didn't change with depo-provera. So, it's wonderfully gone now. I think my doctor I have now took a good guess on the large colon bit and he was right, but that's because he's sees huge numbers of endo patients. Ultimately, other tests should be done.
I think it's ok to take a break but we can't give up trying to get through each day. I'm hoping that things will improve but I have no lofty ideas about adhesion reformation. I just didn't want to cause a blockage. UGH. So far it's ok.
We're all going to be ok. I don't have a blockage and that can sound patronizing. Sometimes, I put some flowers on sale on my table and stare at those forever, or listen to music, or anything that works for you to just tune out. Pain killers- I didn't have to go to high on the chain. I was lucky. That's no fun either.
Hugs, Michele
-- -=--------- ----------- At Tue, 25 May 1999, toni welsh wrote: > >At Mon, 24 May 1999, Michele wrote: >> >>Hi Toni- >>The good news is that the "apron" of the omentum had mostly wispy >>adhesions. With the scope, just moving it, some of the adhesions broke >>lose, but it only takes one nasty one to move something where it ought >>not to be. (Like I need to tell you that, sounds like you've been >>through so much). With the large bowel, it's already to the left and >>move it further up and left. From reading your post, I'm glad it had >>never gone to the right. >> >>I think the positive thought is that although adhesions were found >>pelvically and abdominally, I was believed. I didn't have pain with >>bowel movements...a little after but not that much. I'm here and still >>fighting. Doctors sold me hysterectomy as a solution and I believed >>them. No children. With ORS, it took me a year to find someone to do >>an ultrasound. For me, the darkest times were when I was not believed >>and no one was doing anything. >> >>At least I was believed by this doctor. I don't think he's without >>flaws, I think it just took me too much time to find someone who heard >>me. I'm 33 yrs old, and have had endo since my teen years. >> >>I'm really sorry you are going through so much--I think it's nice to >>know that you are being thought of and not alone. I hope to God these >>gels and new films help. >> >>Take Good Care, >>Michele >> >>>Hi Michele, >>> >>>I had adhesions so bad on the omentum, that the dr did an omenectomy, he >>>removed it hoping thatthis would keep the adhesions rom forming so easy. >>>he had said that this is wherethey seem to be when he does alot of gyn >>>surgery. >>> >>>That wqs done th efirst laparotomy in april, because adhesons had >>>adhered to the last ovary, and the bowels was all shifted to the right >>>side and he could not find the ovary. He then removed the last ovary, >>>but i was still in pain after the surgery, so he did a laparoscopy in >>>august to findthat he could not get through to far due to very dense >>>adhesions, he thought they would still be wispy, so he schedued >>>anotherlaparotomy in sept. I had extensie adhesons all over the loops >>>of small bowel, and the adhesions had pulled the tranverse colon(lg >>>bowel) and was stuck to the pelvic floor, and he said it was smothering >>>my small bowels. Now I see a pain dr, and she is tryig to help with >>>meds and counseling, now I struggle with even moving bowels, I suffered >>>so bad I hadd taken a laxative, and tonss of prune juice which usually >>>makes me go within an hour, ut I finallt told my husband to getme an >>>enama, and I did go after that, but it still hurts bad to have a bowel >>>movement. I too m looking for positive thoughts, if anyone has ANY!! > >Michele, > >So you have been diagnosed with ORS? I still am wonderig about that with >me, i have so much right sidd pain, where the lastavary was, and another >gyn had nentioned this to my dr, but he sais he would have seen it in >there during the second laparotomy, so i am still confused. > >I had stpped premarin for a lng time to se if the hot flashes would come >back, and the one gyn said if they did not come back, there could be a >small tissue that got stuck since the adhesions were so thick, and the >bowels were seriously attached to it, but my gyn says there is no need >to do another ultrasound, he said he knows I have no more masses as I >did before all the surgery. Just wondering how you convinced your dr to >check this and how! > >I increased the senekot last night , but the bowels are gettig harder to >move them, I do not want to take another enema, I was desperatesaturday! > >Let me know how you are doing, and believe me I am trying to keep my >head up but it gets harder everyday! I at least know that eventually my >gyn will do a lap when the time comes, right now I do not know how long >the pain enter plans on treating me, she did say for quite sometime, how >long I do not know. I feel somewhat better when it comes to the pain in >the legs and incision, but the lower pulling pain all along the lower >pelvis is still there, I gues by the way my pain dr talked, that pain is >hard to treat with pain killers! > >Better get soething done around here, so I can go to nursing home to >visit my sick grandmother! > >Toni, Sorry about the typing this web tv keyboaed is very touchy! > >-- >hi kristy, >I have not been able to find the adhesions forum, nd have been off , computerdied, and now we are on web tv. > >I am having alot of trouble with the bowels, and now they say i have become very high risk to obstruct, and I am trying to forgt about it, but it is real worry, itis getting harder to go, and they say it is VERy important for me to go everyday, I cannot even getout of the house early. > >i am now on 900 mgs of neurotin, and oxycontin, which seems to help SOME! > >My new address is welsh1@webtv.net >hope you can email me this web tv is NEW to me, have to figure it out, now I cannot find any of my friends! >