Re: Positive thoughts, Christine and michel
From: toni (welsh1@webtv.net)
Tue May 25 11:21:43 1999
At Tue, 25 May 1999, Michele wrote:
>
>Christine,
>I have such limited knowledge on your situation. I wonder if in some
>people it's just in a different location than the classic texbook. Also,
>stupid adhesions form really fast in some of us as I am sure you know.
>If there are kinks, what are you going to do? The small bowel is not an
>area that I want this to go! Is anything helping? I know that some
>people say that surgery causes more adhesions, but what do you do when
>there is a blockage? I don't think you can leave that alone. You must
>be in alot of pain. Toni is too. I don't know what to say other than I
>think it's good that you are getting the tests as rotten as they can be
>and you are fighting to get better.
>
>Have you had a bowel resection before?
>I wrote to Toni some things I do that might seem stupid, but they help
>in tuning out. What does every one here in this group do to get a break
>from their bodies?
>
>((more Hugs))
>Michele
>
>--
>----------
>---------
>At Tue, 25 May 1999, Christine M. Smith wrote:
>>
>>At Mon, 24 May 1999, Michele wrote:
>>>
>>>Hi Toni-
>>>The good news is that the "apron" of the omentum had mostly wispy
>>>adhesions. With the scope, just moving it, some of the adhesions broke
>>>lose, but it only takes one nasty one to move something where it ought
>>>not to be. (Like I need to tell you that, sounds like you've been
>>>through so much). With the large bowel, it's already to the left and
>>>move it further up and left. From reading your post, I'm glad it had
>>>never gone to the right.
>>>
>>>I think the positive thought is that although adhesions were found
>>>pelvically and abdominally, I was believed. I didn't have pain with
>>>bowel movements...a little after but not that much. I'm here and still
>>>fighting. Doctors sold me hysterectomy as a solution and I believed
>>>them. No children. With ORS, it took me a year to find someone to do
>>>an ultrasound. For me, the darkest times were when I was not believed
>>>and no one was doing anything.
>>>
>>>At least I was believed by this doctor. I don't think he's without
>>>flaws, I think it just took me too much time to find someone who heard
>>>me. I'm 33 yrs old, and have had endo since my teen years.
>>>
>>>I'm really sorry you are going through so much--I think it's nice to
>>>know that you are being thought of and not alone. I hope to God these
>>>gels and new films help.
>>>
>>>Take Good Care,
>>>Michele
>>>
>>>>Hi Michele,
>>>>
>>>>I had adhesions so bad on the omentum, that the dr did an omenectomy, he
>>>>removed it hoping thatthis would keep the adhesions rom forming so easy.
>>>>he had said that this is wherethey seem to be when he does alot of gyn
>>>>surgery.
>>>>
>>>>That wqs done th efirst laparotomy in april, because adhesons had
>>>>adhered to the last ovary, and the bowels was all shifted to the right
>>>>side and he could not find the ovary. He then removed the last ovary,
>>>>but i was still in pain after the surgery, so he did a laparoscopy in
>>>>august to findthat he could not get through to far due to very dense
>>>>adhesions, he thought they would still be wispy, so he schedued
>>>>anotherlaparotomy in sept. I had extensie adhesons all over the loops
>>>>of small bowel, and the adhesions had pulled the tranverse colon(lg
>>>>bowel) and was stuck to the pelvic floor, and he said it was smothering
>>>>my small bowels. Now I see a pain dr, and she is tryig to help with
>>>>meds and counseling, now I struggle with even moving bowels, I suffered
>>>>so bad I hadd taken a laxative, and tonss of prune juice which usually
>>>>makes me go within an hour, ut I finallt told my husband to getme an
>>>>enama, and I did go after that, but it still hurts bad to have a bowel
>>>>movement. I too m looking for positive thoughts, if anyone has ANY!!
>>
>>Hi Michele:
>>I just thought I would comment on what you said about the large bowel
>>moving and you were glad it hadn't moved to the right. Well, mine did
>>and apparently it was not (and is not if it moved back after the lap) a
>>problem. I'm sure that is not the case with everyone, but I thought I'd
>>point out in my case the bowel being in the wrong position was not a
>>problem according to the colo-rectal surgeon I just saw. And colons are
>>his specialty. He said he has seen colons that look like they were tied
>>in knots (and I assume he meant not bothering the patient) At the second
>>lap when they took down some adhesions they discovered that my sigmoid
>>colon had been pulled over to the right pelvic wall and stuck on it. I
>>am sure its been this way for at least 20 years and I never had pain
>>until 2 years ago. (which now I'm beginning to think was unrelated to
>>the bowel) I wondered how the GI doc could possibly do a colonoscopy
>>without knowing my colon went to the right side of my body before it
>>went left and two doctors (the colo-rectal specialist and a doc on a
>>Internet forum) confirmed that this could happen easily. When you do a
>>colonosocpy you get a very limited overall perspective. The endoscopist
>>might get a general idea that the colonoscope was difficult to pass but
>>not know why. This really bothered me thinking he missed this!
>>
>>Chris S.
>
Michele, i have worried about christine for along time, she had surgery
the week before mine, and we kept in touch daily. I was told too that
the adhesions in the small bowel, is what concerns some of y dr, tey
werealot of them and they were like 2 inches thick, and he said they had
te bowels, just aout glued together, as faras the transverse colon
falling to the pelvic floor, they said that was not as much to worry
about as the small bowel, so I dont know, take each day one at a time.
I did p;ant a ton of flowers in the yard and that is where I go when I
am wanting to forget! I t does help some too, I agree.
I am going to push pcp to run some test, I am just tired of feeling so
ba, and I need to know why. I ave not eaten right now for ayear.
Take care all toni