Have you had a bowel resection before? I wrote to Toni some things I do that might seem stupid, but they help in tuning out. What does every one here in this group do to get a break from their bodies?
((more Hugs)) Michele
-- ---------- --------- At Tue, 25 May 1999, Christine M. Smith wrote: > >At Mon, 24 May 1999, Michele wrote: >> >>Hi Toni- >>The good news is that the "apron" of the omentum had mostly wispy >>adhesions. With the scope, just moving it, some of the adhesions broke >>lose, but it only takes one nasty one to move something where it ought >>not to be. (Like I need to tell you that, sounds like you've been >>through so much). With the large bowel, it's already to the left and >>move it further up and left. From reading your post, I'm glad it had >>never gone to the right. >> >>I think the positive thought is that although adhesions were found >>pelvically and abdominally, I was believed. I didn't have pain with >>bowel movements...a little after but not that much. I'm here and still >>fighting. Doctors sold me hysterectomy as a solution and I believed >>them. No children. With ORS, it took me a year to find someone to do >>an ultrasound. For me, the darkest times were when I was not believed >>and no one was doing anything. >> >>At least I was believed by this doctor. I don't think he's without >>flaws, I think it just took me too much time to find someone who heard >>me. I'm 33 yrs old, and have had endo since my teen years. >> >>I'm really sorry you are going through so much--I think it's nice to >>know that you are being thought of and not alone. I hope to God these >>gels and new films help. >> >>Take Good Care, >>Michele >> >>>Hi Michele, >>> >>>I had adhesions so bad on the omentum, that the dr did an omenectomy, he >>>removed it hoping thatthis would keep the adhesions rom forming so easy. >>>he had said that this is wherethey seem to be when he does alot of gyn >>>surgery. >>> >>>That wqs done th efirst laparotomy in april, because adhesons had >>>adhered to the last ovary, and the bowels was all shifted to the right >>>side and he could not find the ovary. He then removed the last ovary, >>>but i was still in pain after the surgery, so he did a laparoscopy in >>>august to findthat he could not get through to far due to very dense >>>adhesions, he thought they would still be wispy, so he schedued >>>anotherlaparotomy in sept. I had extensie adhesons all over the loops >>>of small bowel, and the adhesions had pulled the tranverse colon(lg >>>bowel) and was stuck to the pelvic floor, and he said it was smothering >>>my small bowels. Now I see a pain dr, and she is tryig to help with >>>meds and counseling, now I struggle with even moving bowels, I suffered >>>so bad I hadd taken a laxative, and tonss of prune juice which usually >>>makes me go within an hour, ut I finallt told my husband to getme an >>>enama, and I did go after that, but it still hurts bad to have a bowel >>>movement. I too m looking for positive thoughts, if anyone has ANY!! > >Hi Michele: >I just thought I would comment on what you said about the large bowel >moving and you were glad it hadn't moved to the right. Well, mine did >and apparently it was not (and is not if it moved back after the lap) a >problem. I'm sure that is not the case with everyone, but I thought I'd >point out in my case the bowel being in the wrong position was not a >problem according to the colo-rectal surgeon I just saw. And colons are >his specialty. He said he has seen colons that look like they were tied >in knots (and I assume he meant not bothering the patient) At the second >lap when they took down some adhesions they discovered that my sigmoid >colon had been pulled over to the right pelvic wall and stuck on it. I >am sure its been this way for at least 20 years and I never had pain >until 2 years ago. (which now I'm beginning to think was unrelated to >the bowel) I wondered how the GI doc could possibly do a colonoscopy >without knowing my colon went to the right side of my body before it >went left and two doctors (the colo-rectal specialist and a doc on a >Internet forum) confirmed that this could happen easily. When you do a >colonosocpy you get a very limited overall perspective. The endoscopist >might get a general idea that the colonoscope was difficult to pass but >not know why. This really bothered me thinking he missed this! > >Chris S.