Re: A Question

From: toni (welsh1@webtv.net)
Fri May 28 11:10:44 1999


At Fri, 28 May 1999, Peggy wrote: >
>At Thu, 27 May 1999, toni welsh wrote:
>>
>>At Thu, 27 May 1999, Peggy wrote:
>>>
>>>I forgot to ask this when I posted earlier.Every so often I get a really
>>>weird feeling in my left side.It feels like something is bursting or
>>>reattaching from the abdominal wall.Has any one ever experienced
>>>anything like this? Just thought I would ask.
>>>Thanks,Peggy
>>
>>H Peggy,
>>
>>yes I have the same feeling s you just described almost all the time,
>>but this is what i was tol I may have to learnt to live with it!
>>
>>Today I had alot of different areas that gave me short little stabbing
>>pain, but it was weird it did not last long in one spot, but would move
>>to another. Some of the pains were on the right low, and thn they were
>>on the left, even at the very top of my incision, which I have a
>>vertical scar b/c my gyn 22 years ago had todo the big vertical scar b/c
>>my baby was so big.
>>
>>It was almost like you could feel the adhesions , and knowig how they
>>loo, I know that is whatit is, but it hurts alot, even now, I do not
>>know if my dr will give me anything stronger than what she ha me on, and
>>I really do not know what oxycontin is except she said it is a long
>>acting narcotic, has any one ever taken this, I thought the neurotin
>>would havr helped too by now. The pain pill is 10 mgs, and I am now
>>convinced that adhesion pain IS hard to treat. I go back tues. Iwill
>>see where they go next!
>>
>>Sorry this is so long, but I have not really been feeling very good
>>lately, and getting really down again. Again, where do you go next,
>>when all the drs are afraid to do anymore surgery on you. The gyn did
>>sy there are new things comng out the end of the year so aybe in time he
>>will do the lap, and hope it gets through the adhesions. he did tell me
>>most of mine were VERY extensive, and most of them were 1-2 inches
>>thick, and he said as far as his practice, he has not seen many women
>>with adhesions lke mine, especiallyfours months after my surgery in
>>april. I need to be quiet for now, just VERY low tonight! SORRY! Toni
>
>Toni,Sorry to hear that you are feeling so bad.Hopefully Drs. will be
>able to find something that can help us out more than they are now.Is it
>your gyn that does the surgery for the adhesions or a surgeon? My gyn
>does the surgery for the adhesions.I know how depressing it gets but we
>have to keep hoping that there is an end to this .So don't give up
>hope.And remember that we are all here for you because we are all in
>this together.Peggy

Hi Peggy,

yes, my gyn has done all my surgery, he is fantastic, and he s the ONLY dr that I will have do any surgery for adhesions, he did say that if it would be needed he would have a surgeon ready in case of any bowel problems. He is trying to help me at least he sent me to pain clinic to try to get some help, it is helpig some.

The pain like I had yesterday I have usually EVERY day, but it was worse yesterday! I know he is waiting for the new barriers, that is what he told us, and hopefully he will not be so reluctant to do the surgery again, the trouble he told me was the lap in august they could not get too far b/c the adheions were so dense, that is why they did laparotomy on sept. They had the bowel completely out of the abdomen I read my op report this moring , and it was a very difficult surgery, it took them almost tree hours. I was not scared then, but now for some reason surgery scares m alittle more.

Hope chris gets her tests results soon, and keeps us informed!

--
Toni

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