Re: Chris S.- Pelvic Pain Mapping-Ginny
From: smithy@maine.rr.com
Thu Jul 15 23:03:17 1999
At Thu, 15 Jul 1999, Ginny King wrote:
>
>At Thu, 15 Jul 1999, smithy@maine.rr.com wrote:
>>
>>At Thu, 15 Jul 1999, GKING@MYRICKRE.COM wrote:
>>>
>>>At Thu, 15 Jul 1999, smithy@maine.rr.com wrote:
>>>>
>>>>At Wed, 14 Jul 1999, Ginny King wrote:
>>>>>
>>>>>Chris,
>>>>>
>>>>>Were you the one who said you found a Doctor in Atlanta that did this
>>>>>proceedure? If so do you know his/her name or where I could get more
>>>>>information? Thanks. Ginny
>>>>
>>>>Hi Ginny:
>>>>I can't remember where I found the info about the doctor in Atlanta, but
>>>>it might have been the center with Dr. Lyons. Check back into the June
>>>>archives of the forum and see Helen's post about conscious pain mapping
>>>>websites. I'm going to ask about this at the pain clinic tomorrow.
>>>>Since conscious sedation didn't work with me for my colonoscopy (because
>>>>the procedure was painful they had to give me more medication which
>>>>knocked me out) I wonder if this pelvic pain mapping is successful with
>>>>everyone. Or just some lucky patients? It's hard to understand how they
>>>>do it. You would think poking around anywhere in your pelvis would
>>>>cause pain.
>>>>What tests are you having done? I remember in a post awhile back you
>>>>mentioned you were going the middle of July
>>>> and it seemed so long away and here it is!
>>>>
>>>>Chris S.
>>>
>>>Hey Chris,
>>>
>>>Thanks for the tip on where to look. I started looking through the June
>>>posts before and there were so many that I didn't know where to start.
>>>Thanks. Anyway, Monday is the colonoscopy and endoscopy. The doctor is
>>>concerned that they may have to knock me out as well as there was so
>>>much "ripping" pain of adhesions? when they did the sig. They are still
>>>trying to figure out where the bleeding is coming from. I'm afraid
>>>though it will be like the last time and there will be no answer. The
>>>pain in my side and back is unbearable. Maybe after this procedure they
>>>will at least talk to me about pain management or medication.
>>>reading Helen's post yesterday I asked if she had any advice on getting
>>>doctors to communicate with you. Do you have any suggestions that have
>>>worked for you? Take care. Ginny
>>
>>Hi Ginny:
>> I hope they aren't making you take Golytely for the colonoscopy!
>>I would think that between the colonoscopy and endoscopy they will find
>>out where you are bleeding from your gi tract. The sigmoidoscopy is
>>limited to the lower portion of the tract. I can't remember if they
>>considered
>>crohn's disease with you or not.
>>I can't remember anything from my colonoscopy at all after the first few
>>moments. I remember the first injection of the drug and a kind of
>>twilight feeling in my head. I remember seeing some type of black tube
>>which I assume was the colonoscope, I remember the nurse looking like
>>she was getting "down to business" behind me and that's it. Then I
>>remember hearing the doctor tell me it was all over and it sounded like
>>he was yelling at me, I'm sure that was the effect of the drug. I guess
>>they observe you for a few minutes and i remember watching him sitting
>>doing what looked like a crossword puzzle!!!! They gave me another dose
>>of demerol and versed when I complained so I guess the versed, which is
>>an amnesiac, removed memory of the pain I complained about. Next time I
>>think I would ask them to skip the versed and go with the pain killer
>>only. I'm told this
>>can be done.
>>Good luck. The hardest thing I have with these procedures is
>>surrendering to them. I feel like I still have to be in control of the
>>situation which is very hard when you are drugged. They are there to
>>take care of you. That's their job and they love it or they wouldn't be
>>doing it!
>>As far as communicating with doctors, well, I don't think I do that very
>>well. I'm am always criticizing myself for my apparent lack of ability
>>to get them to realize how this situation is affecting my life. I guess
>>they feel that if you are able to function, work, etc. it can't be that
>>bad. So the last time I saw my pcp I basically told him that this was
>>ruining my life. He seemed to be impressed with that and referred me to
>>the pain clinic. I do think it easier now that I have had to have a pcp
>>for insurance purposes. I feel he is beginning to understand me better
>>now that he has known me longer. This is why I'm taking the loss of my
>>gyn so hard. I saw him for 20 years-its hard adjusting to someone new.
>>
>>Chris S.
>
>Chris,
>
>Yeah I have to prep with that yucky stuff. Been there, done that, hated
>it. It is Crohn's that they are looking for. I am not confident that
>they will find anything because I went through the colonoscopy two years
>ago with no diagnosis.I think that I have the same problem that you do
>regarding doctors. I guess I keep trying to be "brave" yet it is
>interpreted that I am not in much pain. Good luck with the pain clinic.
>I hope they are able to give you some answers.
>Ginny
Hi Ginny:
Fleets Phosphosoda is much easier to tolerate than Go-lytely. I know
some people think Fleets is nasty stuff, but its nothing compared to
Golytely in my opinion. And a gallon of it !!! Yuch. When I had my
second lap they prescribed the Golytely and I asked them to substitute
the Fleets, which is what the gi docs had prescribed for my colonoscopy.
They said sure, but it meant a two day prep instead of one.
I would think they have to find out where you are bleeding. Maybe the
endoscopy will show something.
Chris