Re: Chris S.- Pelvic Pain Mapping-Ginny
From: Ginny King (gking@myrickre.com)
Thu Jul 15 16:48:06 1999
At Thu, 15 Jul 1999, smithy@maine.rr.com wrote:
>
>At Thu, 15 Jul 1999, GKING@MYRICKRE.COM wrote:
>>
>>At Thu, 15 Jul 1999, smithy@maine.rr.com wrote:
>>>
>>>At Wed, 14 Jul 1999, Ginny King wrote:
>>>>
>>>>Chris,
>>>>
>>>>Were you the one who said you found a Doctor in Atlanta that did this
>>>>proceedure? If so do you know his/her name or where I could get more
>>>>information? Thanks. Ginny
>>>
>>>Hi Ginny:
>>>I can't remember where I found the info about the doctor in Atlanta, but
>>>it might have been the center with Dr. Lyons. Check back into the June
>>>archives of the forum and see Helen's post about conscious pain mapping
>>>websites. I'm going to ask about this at the pain clinic tomorrow.
>>>Since conscious sedation didn't work with me for my colonoscopy (because
>>>the procedure was painful they had to give me more medication which
>>>knocked me out) I wonder if this pelvic pain mapping is successful with
>>>everyone. Or just some lucky patients? It's hard to understand how they
>>>do it. You would think poking around anywhere in your pelvis would
>>>cause pain.
>>>What tests are you having done? I remember in a post awhile back you
>>>mentioned you were going the middle of July
>>> and it seemed so long away and here it is!
>>>
>>>Chris S.
>>
>>Hey Chris,
>>
>>Thanks for the tip on where to look. I started looking through the June
>>posts before and there were so many that I didn't know where to start.
>>Thanks. Anyway, Monday is the colonoscopy and endoscopy. The doctor is
>>concerned that they may have to knock me out as well as there was so
>>much "ripping" pain of adhesions? when they did the sig. They are still
>>trying to figure out where the bleeding is coming from. I'm afraid
>>though it will be like the last time and there will be no answer. The
>>pain in my side and back is unbearable. Maybe after this procedure they
>>will at least talk to me about pain management or medication.
>>reading Helen's post yesterday I asked if she had any advice on getting
>>doctors to communicate with you. Do you have any suggestions that have
>>worked for you? Take care. Ginny
>
>Hi Ginny:
> I hope they aren't making you take Golytely for the colonoscopy!
>I would think that between the colonoscopy and endoscopy they will find
>out where you are bleeding from your gi tract. The sigmoidoscopy is
>limited to the lower portion of the tract. I can't remember if they
>considered
>crohn's disease with you or not.
>I can't remember anything from my colonoscopy at all after the first few
>moments. I remember the first injection of the drug and a kind of
>twilight feeling in my head. I remember seeing some type of black tube
>which I assume was the colonoscope, I remember the nurse looking like
>she was getting "down to business" behind me and that's it. Then I
>remember hearing the doctor tell me it was all over and it sounded like
>he was yelling at me, I'm sure that was the effect of the drug. I guess
>they observe you for a few minutes and i remember watching him sitting
>doing what looked like a crossword puzzle!!!! They gave me another dose
>of demerol and versed when I complained so I guess the versed, which is
>an amnesiac, removed memory of the pain I complained about. Next time I
>think I would ask them to skip the versed and go with the pain killer
>only. I'm told this
>can be done.
>Good luck. The hardest thing I have with these procedures is
>surrendering to them. I feel like I still have to be in control of the
>situation which is very hard when you are drugged. They are there to
>take care of you. That's their job and they love it or they wouldn't be
>doing it!
>As far as communicating with doctors, well, I don't think I do that very
>well. I'm am always criticizing myself for my apparent lack of ability
>to get them to realize how this situation is affecting my life. I guess
>they feel that if you are able to function, work, etc. it can't be that
>bad. So the last time I saw my pcp I basically told him that this was
>ruining my life. He seemed to be impressed with that and referred me to
>the pain clinic. I do think it easier now that I have had to have a pcp
>for insurance purposes. I feel he is beginning to understand me better
>now that he has known me longer. This is why I'm taking the loss of my
>gyn so hard. I saw him for 20 years-its hard adjusting to someone new.
>
>Chris S.
Chris,
Yeah I have to prep with that yucky stuff. Been there, done that, hated
it. It is Crohn's that they are looking for. I am not confident that
they will find anything because I went through the colonoscopy two years
ago with no diagnosis.I think that I have the same problem that you do
regarding doctors. I guess I keep trying to be "brave" yet it is
interpreted that I am not in much pain. Good luck with the pain clinic.
I hope they are able to give you some answers.
Ginny