Re: Another normal test!?
From: Laura Newman (LNewman@winston.com)
Mon Jul 19 16:43:25 1999
Ginny, do you live in the Maryland area? The reason I ask is because I go to a pretty good P.M. center and they have no problem with giving you what you need. As for me, I am on a morphine pump (pump is implanted in a pocket under the skin with the tube attached to my spine), I take 900 mg of Neurotin during the day and 1200 at night along with 50 mg of Elavil at bedtime. I STILL suffer a great deal during the day (I work as a legal secretary) and literally collapse when I get home every evening. If it were not for the drugs, I wouldn't be able to even do any of this. My second question to you is this - why not switch pcp's (I did when I was with CapCare and NYLCare) until you get someone you can work with? I tell you, managed care sucks, but, if it is all you have, at least make it work FOR you. I believe you shouldn't have to beg for something that is do you, a little comfort, that is all you are asking. He/she should be sympathic to your needs and when they are not, move on. You have to decide when you have had enough. Don't let them keep you or a string!!
>>> Ginny King <gking@myrickre.com> 07/19/99 03:28PM >>>
Well, I had my colonoscopy and endoscopy and received another normal
result with the exception of the diagnosis of reflux( a problem I have
not had any symtons of) They are waiting on the biopsy reports but it
looks like another trip to the surgeon to discuss the adhesions. The
pain I am in seems to be adhesion related as it is the same intense
burning, tearing pain I have had in the past. But still no explaination
for the blood, diarrhea and infections that periodically attack my
bowels. Oh well, I kind of figured that. I still have not received
anything for the pain (It was so bad last week my husband had to come
get me and carry me to the car because I couldn't walk). I don't take
many meds and don't understand why the pcp is so reluctant to give me
something mild that might at least make it possible to work until they
figure out the next step. Thanks for the support. I hope everyone has
a better "pain free" week. Ginny