At Mon, 19 Jul 1999, Laura Newman wrote:
>
>Ginny, do you live in the Maryland area? The reason I ask is because I go to a pretty good P.M. center and they have no problem with giving you what you need. As for me, I am on a morphine pump (pump is implanted in a pocket under the skin with the tube attached to my spine), I take 900 mg of Neurotin during the day and 1200 at night along with 50 mg of Elavil at bedtime. I STILL suffer a great deal during the day (I work as a legal secretary) and literally collapse when I get home every evening. If it were not for the drugs, I wouldn't be able to even do any of this. My second question to you is this - why not switch pcp's (I did when I was with CapCare and NYLCare) until you get someone you can work with? I tell you, managed care sucks, but, if it is all you have, at least make it work FOR you. I believe you shouldn't have to beg for something that is do you, a little comfort, that is all you are asking. He/she should be sympathic to your needs and when they are not, move on
>. You have to decide when you have had enough. Don't let them keep you or a string!!
>
>>>> Ginny King <gking@myrickre.com> 07/19/99 03:28PM >>>
>Well, I had my colonoscopy and endoscopy and received another normal
>result with the exception of the diagnosis of reflux( a problem I have
>not had any symtons of) They are waiting on the biopsy reports but it
>looks like another trip to the surgeon to discuss the adhesions. The
>pain I am in seems to be adhesion related as it is the same intense
>burning, tearing pain I have had in the past. But still no explaination
>for the blood, diarrhea and infections that periodically attack my
>bowels. Oh well, I kind of figured that. I still have not received
>anything for the pain (It was so bad last week my husband had to come
>get me and carry me to the car because I couldn't walk). I don't take
>many meds and don't understand why the pcp is so reluctant to give me
>something mild that might at least make it possible to work until they
>figure out the next step. Thanks for the support. I hope everyone has
>a better "pain free" week. Ginny