Re: Adhesions/Gall Bladder...I Need Some Advice

From: Tina Shelby (tshelby@usit.net)
Sat Dec 4 12:51:08 1999


Kim,

I would be interested to know about Diagnosis codes for SSI approval as well. I go to court Dec 17th to try and get me approved for disability, so any help you can give in this area would be greatly, greatly appreciated!

Thanks,

Tina

At 03:34 PM 12/3/99 -0600, you wrote: >Bev, The man at the SSI did not give me a number, and as a matter of fact,
>I checked my caller ID, and it is listed as "unknown name and number" so
>that will not do us any good. He did mention that he is sending me a copy
>of the report and his findings, so as soon as I get everything, I'll let you
>know. I can fax it to you if you leave me a fax number. If you want to
>reach me via my own e-mail, you can send it to khickey@mciworld.com or
>hickey-k@troy.k12.oh.us. Thanks, have a great day! Kim
>-----Original Message-----
>From: Bernie and Beverly Doucette <bnb@cybrzn.com>
>To: Multiple recipients of list ADHESIONS <adhesions@talk.obgyn.net>
>Date: Friday, December 03, 1999 12:42 PM
>Subject: Re: Adhesions/Gall Bladder...I Need Some Advice
>
>>Dear Kim,
>>Did the Social Securtiy agent state to you just what diagnostic code was
>>used for the others who did receive the disability ? I know that a DR.
>must
>>be very specific as to what is stated on the application as far as
>>themedical condition...did he explain any specifics that were needed on the
>>application that would help someone get the disability due to " inoperable
>>adhesions? " Casn you be more specific on what he said or could i have
>his
>>phone numder...or you have himcall me or anything you think would help me
>>get information as to just HOW do people suffering with inoperable adhesion
>>actually get SS disability. Thank-you much for your time..Bev

>>>----- Original Message -----
>>From: khickey <khickey@mciworld.com>
>>To: Multiple recipients of list ADHESIONS <adhesions@talk.obgyn.net>
>>Sent: Thursday, December 02, 1999 8:13 PM
>>Subject: Re: Adhesions/Gall Bladder...I Need Some Advice
>>
>>> Bev, I did hear back from the Social Security Office today. They state
>>that
>>> I am ineligible for any SSI, due to the fact that I do not have enough
>>work
>>> credits. I have worked for Hospice, and other nursing facilities for so
>>> many years, and been on contract basis, that a lot of my hours, and pay
>>were
>>> not reported to SSI. They are willing to re-submit my request for
>>benefits
>>> after one more year of work with the high school. The man I spoke with
>>was
>>> very informative, and said there are several people in this area who are
>>> currently receiving benefits from SSI, that have been diagnosed with
>>> in-operable adhesions, and chronic pain. He said for me to not give up
>>> hope, and try back in about Sept. 2000. He said he knew that was a long
>>> time, but it would be worth it. He also advised me that because I am a
>>> school employee, and paying into school unions, and retirement, that they
>>> (school unions) also have a benefit package available to me, that may be
>>> used until I am eligible for SSI. I feel like I will wait as long as
>>> possible. They tell me that if I work until at least Sept., I will get
>>full
>>> benefits (if I am accepted as being disabled) The man at SSI said that
>>the
>>> doctor will need to be very specific in the reports as to what I am
>>> experiencing with pain, and how it affects me in everyday life. I am
>>doing
>>> a little better with my pain today, but I am real groggy during the day.
>>> This is especially hard when you are trying to explain the U.S.
>government
>>> and all of the workings of Congress to 12th grade students. ha ha. I
>was
>>> teaching two people today on why there are so many committees in the U.S.
>>> House of Reps. and Senate. I barely remembered what they were. I must
>>have
>>> gotten some of these items through to them, they seemed to understand it.
>>Oh
>>> Boy, I am glad I have 125 kids that understand when I am having a "bad"
>>> day. I hope to be able to have fewer of those, any day now. ha ha.
>>> I will let you all know how I am doing with my pain, and the new pain
>>> killers (Vioxx-25mg.), after a few more days of taking it. They seem to
>>> take the edge off, and yet allow me to be somewhat intelligent on my job.
>>I
>>> do find that I get very sleepy during the afternoon, but I guess most
>>people
>>> do, and I may not be abnormal.
>>> Well, thanks for letting me go on. I do appreciate all of the help
>>and
>>> encouragement I receive from each and every one of you guys. Thanks and
>>God
>>> Bless, Kim Hickey
>>> -----Original Message-----
>>> From: Bernie and Beverly Doucette <bnb@cybrzn.com>
>>> To: Multiple recipients of list ADHESIONS <adhesions@talk.obgyn.net>
>>> Date: Tuesday, November 30, 1999 2:10 PM
>>> Subject: Re: Adhesions/Gall Bladder...I Need Some Advice
>>>
>>> >Dear Kim..
>>> > Please keep us informed as to what the diagnostic code you would be
>>under
>>> >in the event you were to secure SS disability..ok? This is an area that
>>is
>>> >relatively new and is needed by many who suffer as you do.
>>> >
>>> > Is there a short term disability benefit through your current job
>>> positiion
>>> >that you could take advantage of untill you could secure another means
>of
>>> >income? Do you have a positive diagnosis of having had abdominal
>>adhesions
>>> >through prior surgery's?
>>> >Are you receiving any anti-inflamitory medications along with your pain
>>> >medications? Inflamation is the cause of adhesion pain...( See my forum
>>> June
>>> >of 99 ) Might help bring your pain level to a livable one, of course
>>you
>>> >still need to respect your activity levels as to the pain experienced by
>>> >what you do.
>>> >
>>> >Best of luck
>>> >
>>> >Bev
>>> >

>>>> >----- Original Message -----
>>> >From: khickey <khickey@mciworld.com>
>>> >To: Multiple recipients of list ADHESIONS <adhesions@talk.obgyn.net>
>>> >Sent: Monday, November 29, 1999 9:57 AM
>>> >Subject: Re: Adhesions/Gall Bladder...I Need Some Advice
>>> >
>>> >> Hi everyone, I wanted to let you know how my family doctor's visit
>>went
>>> >> today. I was in terrible pain today, and when he tried to feel where
>>the
>>> >> pain was(lower right abdominal quadrant), I almost came off of the
>>table.
>>> >> He said he definitely wanted me to get to a doctor who had more skills
>>on
>>> >> this subject. He gave me a new drug for pain that doesn't cause
>>> >drowsiness.
>>> >> It is called Vioxx. Has anyone heard of this? He said it is finding
>>to
>>> >be
>>> >> the best drug for chronic pain with no side effects. He also gave me
>a
>>> >> prescription for Vicodin, and Talwin. He said he knew I was careful
>>with
>>> >> narcotic drugs, but felt I definitely needed them. He was referring
>me
>>> to
>>> >> another surgeon, and wanted to know about Dr. Semertzides (who is
>>calling
>>> >me
>>> >> back today), and the problem is, Dr. S. is not in my HMO plan. Does
>>> >anyone
>>> >> have any suggestions on how to get around this problem? I am having a
>>> >> painful day today. My walking is very hard to do, and I find that
>even
>>> >> moving around the house is almost impossible today. I am scheduled to
>>> >meet
>>> >> with a representative from SSI today at 2:30, so maybe having a "bad"
>>day
>>> >is
>>> >> good, so they can see how bad this pain is. Of course, the doctor
>>will
>>> >not
>>> >> let me go back to work today, so I will have to face this mean boss
>>when
>>> I
>>> >> return on Wed. He just doesn't understand pain, and how it
>>incapacitates
>>> >a
>>> >> person. Well, I will let everyone know what the SSI office says
>today.
>>> >> They are giving me some helpful items on Adhesions, and what the SSI
>is
>>> >> doing with these cases. Thanks everyone. Kim Hickey
>>> >> -----Original Message-----
>>> >> From: Rhonda R. White <samuels1@us.net>
>>> >> To: Multiple recipients of list ADHESIONS <adhesions@talk.obgyn.net>
>>> >> Date: Sunday, November 28, 1999 7:10 PM
>>> >> Subject: Adhesions/Gall Bladder...I Need Some Advice
>>> >>
>>> >> >Questions are at the end.
>>> >> >
>>> >> >I recently had a HIDA Scan which showed that my gall bladder doesn't
>>> >> >excrete. In October I had a laparoscopy to remove pelvic adhesions.
>>> >> >While the gyn was doing the lap, she told me that my liver & gall
>>> >> >bladder were covered with adhesions. So bad that she couldn't even
>>see
>>> >> >the organs. Because I had limited her to the laprascope, she
>couldn't
>>> >> >take those adhesions down. When I relayed the gyn's findings to my
>>> >> >primary, she said I needed a general surgeon. The general surgeon
>>says
>>> >> >that she doesn't take down adhesions without a bowel obstruction,
>>which
>>> >> >I don't have. She says she absolutely won't bother the adhesions,
>>and
>>> >> >will only bother them (as few as necessary) if they get in the way of
>>> >> >her removing my gall bladder laprascopically. She also says that my
>>> >> >pain covers a larger area than just from my gall bladder and that for
>>> >> >that reason, she's not sure that my gall bladder is the sole (or even
>>a
>>> >> >part) source of my pain.
>>> >> >
>>> >> >I also gathered from my gyn, that while my adhesions had re-formed,
>>they
>>> >> >weren't nearly as severe as they had be during a previous surgery
>>> >> >meaning that I didn't get any new ones and that the ones that had
>>grown
>>> >> >back weren't as bad as they had been. This gives me hope that if
>>> >> >perhaps much care is taken then to remove my adhesions in the upper
>>> >> >right quadrant, they won't grow back; and if they do, it won't be as
>>> >> >severe. Because I want to avoid having surgery again for as long as
>>> >> >possible, I want to have my gall bladder removed as well as having
>the
>>> >> >adhesions taken down. That way, I'm covering all the bases.
>>> >> >
>>> >> >I don't have much experience in dealing with insurance companies but
>>I'm
>>> >> >wondering how much success I can expect with Cigna (HMO) in getting
>>them
>>> >> >to allow me to have 2 surgeries at the same time. Can a gyn remove
>my
>>> >> >gall bladder? Liklihood of getting a gyn & a general surgeon to work
>>> >> >together? Can anyone recommend any good surgeons in the Washington,
>>> >> >D.C. area? Finally, I've noticed that all of the doctors who seem to
>>> >> >care anything about adhesions are gynecologists. Am I imagining
>that?
>>> >> >If not, why are gynecologists the only ones who seem to work on
>>> >> >adhesions?
>>> >> >
>>> >> > to the unsubscribe form at
>>http://www.adhesions.org/forums/listcmds.htm
>>> >> >
>>> >>
>>> >> to the unsubscribe form at
>>http://www.adhesions.org/forums/listcmds.htm
>>> >
>>>
>>
>


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