Re: Ladies Home Journal -- Ginni

Tue Feb 8 13:49:16 2000

Ginni, I had to respond if for no other reason than to say that if you are in the hospital for your birthday, or even getting operated at that time, what better birthday gift than a new chance at a good life!!! That would be a present to all of us that no other gift could come close to!!! Also, I have a husband just like yours, and I know for a fact that I would not be making it through without him!!! I participated in a study for SNX-111, a venomous drug found in poisonous sea snails. It was a blind study too, with me drawing the placebo and the others drawing the real drug (only 4 of us). Needless to say, after observing us for three days, they had a host of adverse reactions but they gave me the option of taking the real drug (since my three days were up along with theirs) so I said yes and believe it or not, the drug worked for me but I was so out of it, I didn't even know what was going on. Everything for me is a blur, I have had to go by the drs. and nurses account of everything because I would drop off to sleep, when talking I meshed sentences together which made no since at all, but the good part -- no pain!!! I do remember crying like my whole family was killed when they told me they had to take me off the drug and call it a failure. I wanted to keep it even if I didn't make sense (now I can honestly say I am glad they didn't let me do that) because that was the first time in years that I was actually pain free!! Maybe with this study some good can come of it. Let me know if they need more candidates, as I would be more than happy to apply!!! Take care and good luck -- God is with you always and so are we!!!

> -----Original Message-----
> From: []
> Sent: Tuesday, February 08, 2000 3:35 PM
> To: Multiple recipients of list ADHESIONS
> Subject: Re: Ladies Home Journal -- Ginni
> Hi all,
> Change in plans for me. Not going to Atlanta for surgery after all, going
> to
> find the way to California. Saw my specialist here and he feels that I
> need
> to see Dr. Nezhat in California. There is remarks in my last operative
> report that a bowel resection may be necessary this time and he feels that
> I
> MUST see the doctor who has helped me twice and knows the exact spot where
> this trouble lies. He feels he is only one a few doctors who can do this
> laprascopically. He also know Dr. Reich and said he is amazing! I asked
> if
> I should go to see him and he said it would be better to stay with the
> doctor
> who had already been in there and knew my case, and that Dr. Reich would
> have
> to start from scratch with me. I am not sure where we will find the
> money,
> but it must be done and soon. The doctor here said something about if
> they
> do not do the surgery within the week that they may have to put a tube in
> my
> neck and build me up so that I can handle the surgery. I don't want that!
> Also, my doctor here told me he thinks they are doing double blind studies
> with the gel based barriers and maybe I could get on the study as I am a
> perfect candidate. You don't know though whether you get it or not he
> said
> because it is a double blind study but worth a try I think. I am going to
> check into it.
> So now trying to get this plan worked out and travel plans. Feel so
> guilty
> that we have to use money for my health when the family could use so many
> things. But my blessed husband tells me that I am the heart of the family
> and without me nothing else matters. I am so blessed to have found a man
> who
> supports me in this illness. My birthday is coming up and it will be just
> my
> luck to be operated on then. I am thinking about keeping a day by day
> diary
> of the before and through surgery and after for my article. What do you
> think? Thank you all so much for all your kind words and support. I
> don't
> know what I would have done without you! Hope everyone is dealing the
> best
> they can. Ginni

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