Re: HELP ME PLEASE

From: Deb Stevens (ddoffice@noln.com)
Mon Sep 18 11:31:45 2000


Linda, The system is a pump that is placed under the skin that is connected to the spine and the area of hte pain. BY what I'm understanding it regulates the medicine internally so that I would have less pain but the medicine wouldn't be affecting my brain! It seems that it would be replaced every 3-5 years when the batery runs out and the medicine would be refilled every month or so depending on usage! Sounds like an alternative if I can't get rid of these pains! Deb At Sun, 17 Sep 2000, Linda Halford wrote: >
>Dear Deb,
>
>What is a Synchromed Infusion System? My pain specialist has suggested the
>Morphine Pump implant. I had my abdomen secured with "Dura Mater" after it
>herniated a thrid time. Dr. Bernd-Uwe Sevin a Mayo Clinic OBgyn/Oncologist
>surgeon performed it.
>
>I would not want to have surgery to remove adhesions if it is not a
>permanent solution. From what I have learned about Dr. Reich's
>"Adhesionlysis" procedure, adhesions do not return. His theory is "the
>solution to the pollution is dilution." This makes sense to me.
>
>I look forward to hearing from you soon. Thanks!
>
>--
>Linda Halford, Jacksonville, FL
>
>>From: "dstevens" <ddoffice@noln.com>
>>Reply-To: adhesions@obgyn.net
>>To: Multiple recipients of list ADHESIONS
>><adhesions@mail.medispecialty.com>
>>Subject: HELP ME PLEASE
>>Date: Fri, 15 Sep 2000 10:43:05 -0500
>>
>>HI! My name is Debbie and I have the same concerns as many of you do! First
>>how does one know when to actually go through another surgerical procedure
>>and with whom? I had adhesions removed in 1988 and was painfree until 1998!
>>At that time I had a Labroscopy that removed major sheaths of adhesions
>>(pictures shown had no view of any organs as the adhesions were so thick!).
>>Then 2 months later I had a hernia operation, the doctor used the Sepramesh
>>to patch it. I had some relief for a couple of weeks, not painfree-just
>>relief, then I had increased pain! Eventually I had a laproscopy which I
>>had my right ovary removed and more adhesions removed!! I was put on Lupron
>>therapy as there were signs of Endometriosis. I was told I could be on
>>Lupron for only 6 months when it was terminated the pain became
>>excrutiating again. Then this past Nov I had a hysterectomy done, which
>>should have killed the pain as I was told that my left ovary was completely
>>imbedded in my pelvic bone!! The doctor did use Interceed to help stop
>>future adhesions! But unfortunately I had no relief!! Now I have been
>>without a job for almost a year as the pain has held me from being able to
>>do much activity, be it sitting, standing, or walking, the only position
>>that I have relief is in a lounging position with my legs up!! Now my
>>question: Will I ever be able to rid of this problem and get back to a
>>normal life?? My pain specialist is considering placing a SynchroMed
>>Infusion System in my body! The problem I see with this is the knowledge
>>that I'll be returning for miny surgeries every couple of years to replce
>>the product when the battery dies!! Currently I am fighting to get
>>disability and have been worned that it will be a hard fight. They give me
>>an attitude with the assessment as we know the old school says adhesions
>>don't cause pain!!!! If one goes through another operation, which can cause
>>more adhesions, how can it be diagnosed that it's adhesions causing the
>>pain unless they go operate again to see if that is causing the pain??? As
>>I see it, I'm getting into a cycle of operations to see if I still have
>>adhesions and if whatever barrier is useed actually worked!!
>>PLease help give some confidence or support that if I do have another
>>operation the pain will subside!!
>>Thanks
>>Deb
>

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