Re: bowel trouble
From: Jaynie Jarvis (hipjaynie@webtv.net)
Sat Nov 4 09:48:31 2000
At Fri, 03 Nov 2000, Verna Cohen wrote:
>
>Hi Toni and also Nanc....I'll respond to both at the same time.
>
>I have been going through the very same things as you both have. I have
>had my local surgeon turn me down flat and also a GI laprascopic surgeon
>in Stanford also said no way. I have been following the low residue
>diet as much as possible and it does help. But sometimes I end up
>getting blocked up for days on end. I then of course resort to the
>Fleet laxative. What a way to live....huh?
>
>This past Monday I had a barium enema test done which by the way the
>radiologist said came back normal. Yeah right....that is why I was in
>incrutiating pain while they were doing the test! I'm glad the insides
>of my intestines are looking OK but that has nothing to do with the
>adhesions that pull them to my left hip when I have food/fiber lodged in
>there. So I spent $300 bucks on sonogram that showed nothing...and who
>knows how much for the barium test...which they also said is clear...and
>for what? Just to be told we will not do surgery on you JUST for pain.
>They used those words.
>
>I realize that we have to be very careful about the surgeons we choose
>to deal with. We need to make sure that they know what they are doing
>with adhesions. But, like you, I can't, by no stretch of the
>imagination, afford to go to Drs. R & R, or Dr. Korell.
>
>The one thing I have noticed is that my pain was a bit better for
>several days after the barium enema prep. So I figure until I can find
>the right doctor or afford to go to the best.....I will do a barium test
>prep day every so often. Which means nothing but clear liquids all day
>and several doses of Fleet. From a doctor's view point I don't know if
>that is the thing to do....but I do know that when my intestines are
>emptied the pain decreases substantially. I do take a multi vitamin and
>drink Ensure and drink lots of vegetable drinks like V8 and mega-green.
>On a daily basis I drink prune juice and citrucel as well as stool
>softeners.
>
>I feel your frustation....but we just have to hang in there. I think
>that in dealing with this disease we become very in tune with our
>bodies. I know for sure that certain foods, like popcorn, nuts, salad,
>beef and sad to say cheese, etc.. will cause me pain. I also know
>what types of physical activity will cause me trouble. Our turn will
>come when we will find the right doctor who understands and will help.
>In the meantime, we need to be good to ourselves physically and
>mentally. Not always easy, I know, but I know for sure that I DO feel
>better when I am staying positive.
>
>Sending out a big hug of friendship & understanding,
>Verna
Verna, I too was ordered a barium enema and had severe pain while doing
it. The doctor wanted to know if my intestine were stuck to my back
because of back pain. It came out negative. Then just 3 weeks ago I
had a Laporscopic surgery and he said my intestines were stuck
everywhere, such as my vagina, bladder, back, sides and abdomen and to
each other. I also had a kink !!!! I will never do another one if my
life depends on it. And I think no one else should either because they
never show anything and are to painful. I also had decreased pain
afterward though. That is my 2 cents worth. Thanks Jaynie