Re: Completely AWFUL doc visit...I'm in a really dark place right now

From: Jaynie Jarvis (hipjaynie@webtv.net)
Mon Nov 6 03:51:11 2000


At Mon, 6 Nov 2000, Susan_OR wrote: >
>Hi Everyone...
>
>I feel so alone and confused and desperate...I don't even know where to
>turn or what to do. I have decided that I am done with my doctor and I
>won't be going back. I don't think I'm going back to my gyn either...so
>now I get to go thru the fun experience of finding new docs. I went
>today and my doc prescribed Neurontin (has anyone tried this and what
>did you think?) and then told me how it would most likely take a long
>time to work, if it helped at all. So, of course, like anyone in pain
>would...I asked her to refill my pain meds while we were waiting for
>this to work. Can you already guess what the answer was? No...that's
>it...just no. I asked her what I was supposed to do then...just suffer?
>And she just looked at me like I had 3 heads. Dammit, I'm not a druggie
>and I'm not crazy....I'm in PAIN! She said I am just too young to be on
>pain meds all the time and that I have already been on them for 6 months
>so she couldn't refill it. Like I want to be on them?!? I'm still in
>pain and if they could offer me any other solution I would gladly stop
>taking the pain meds, but that is the ONLY thing that helps at all. She
>said, "honestly, I don't really think anything is going to significantly
>help you and Dr. Peterson (my gyn) concurs". Ok, so what are they
>doing? Humoring me? What the heck (not my first choice of words I should
>say) are they doing and why am I paying them? I'm done with them. I've
>only got 6 pain pills left so it's going to be getting real tough in the
>next day or so. If I am too young to be on pain meds then I am too
>young to just accept that I will be in this awful pain forever....I
>can't just accept that. I just can't.
>
>I have thought about Scranton, but honestly, I don't know how we'd swing
>the cost. Germany is a thought...but that just scares me to go so far
>away. So, I'm still trying to grasp onto life savers closer to home.
>I've been in contact with a Dr. Jerry Perez down in California in the
>Bay area. I'm hoping he might be able to help. At least with the
>lymphatic cyst, if not the adhesions. For right now, tomorrow...I've
>got to find a doctor who will treat this pain. It is getting to the
>point that I can't stand it one more second....let alone weeks. They
>are going to find me holed up in some dark, dingy hole playing with
>voodoo dolls in little white coats. Wouldn't that be fun?!? LOLLOL I'm
>completely joking, of course! Just had to get that out. I really am
>getting desperate. There just has to be a way to get relief.
>
>I'm praying for everyone who is off on their journey to wellness....
>
>Hugs,
>Susan

Susan, that sounds like me at at 6 months after 2 surgeries. He just sent me out the door. (my gyn) He did give me 15 vivoden, whoopee I was so lost. It's like if they can't fix you then they don't want to be reminded of it. I still had my primary care doctor who supported me in any treatment I wanted to do except this last surgery. She has been waiting for me to get a pain clinic doc for months to despense my pain pills and I finally found one but he wants her to despense them. Not sure how that is going to go over !

If you read the quilt I am sure you will find stories like yours everywhere. That is why you have got to see that YOU ARE NOT ALONE . We have all been there. What I did is ask all my friends if they had any to get me by till I could get in to see a doctor. Everyone has some pain pills that they did not take all the script from a tooth ache or something. I did take alot of harrassment from some friends for that because I am an old druggie from years back. But I did not care I was in PAIN. I also had someone get me some 222's from Canada in case I ever ran out. There is a pain panic button that you can e-mail and there is doctors there that will write emergency script for you. I will try and find that page. Pain clinics take awhile to get into so maybe you could convince one of your doctors to give you meds till you get into the pain management. They like that. Of course take some tylenal or alot of it. Try the nuerontin too. Lots of us have tried it and maybe it has worked for some people but not me. No pain decrease just sat around with my mouth open like I was a few screws loose. Good-luck and don't give up !!!!! Start asking other women who has a good doctor or a bad one that does't mind giving out pain pills. Your friend Jaynie


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