pain med

From: ZIMLICKI,PAULA M (MKT-PMZ@womans.com)
Mon Nov 6 08:55:16 2000


Susan, Is there a medical school near where you live? The reason I ask is that often doctors at medical schools are more enlightened about pain med and medical schools or hospitals affiliated with them often have a pain clinic. If so, you might try calling them. I have been where you are now, and really feel for you. I wish I could do something to take away your pain. I offer this possibility as one more thing for you to try. Also, have you done any research on pain? I know there is new thinking about patients and pain med and perhaps you can find an article out there that will support your position, and you can give it to your doctors so they can be educated. I know as patients we should not have to do our own research, but it is reality that many times we do. If I come across any info about pain meds and doctors, I will be sure to let you know. Take care, Paula Paula M. Zimlicki mkt-pmz@womans.com

> -----Original Message-----
> From: rmasse2333@aol.com [SMTP:rmasse2333@aol.com]
> Sent: Monday, November 06, 2000 7:51 AM
> To: Multiple recipients of list ADHESIONS
> Subject: Re: Completely AWFUL doc visit...I'm in a really dark place
> right now
>
> Susan
> My heart goes out to you!! I have been right where you are now. Dont
> give up or give in!! There is hope. Try to get to a pain clinic, at
> least they will make sure you have pain meds. Even if you have to talk
> to your dr one more time. Once you get meds, then you can look for
> another dr. I am going to Germany alone. It is far away from home,
> but, I know I will come home feeling better. & the cost is less. I
> will send a prayer for you.
> Robin
>
> At Mon, 6 Nov 2000, Susan_OR wrote:
> >
> >Hi Everyone...
> >
> >I feel so alone and confused and desperate...I don't even know where to
> >turn or what to do. I have decided that I am done with my doctor and I
> >won't be going back. I don't think I'm going back to my gyn either...so
> >now I get to go thru the fun experience of finding new docs. I went
> >today and my doc prescribed Neurontin (has anyone tried this and what
> >did you think?) and then told me how it would most likely take a long
> >time to work, if it helped at all. So, of course, like anyone in pain
> >would...I asked her to refill my pain meds while we were waiting for
> >this to work. Can you already guess what the answer was? No...that's
> >it...just no. I asked her what I was supposed to do then...just suffer?
> >And she just looked at me like I had 3 heads. Dammit, I'm not a druggie
> >and I'm not crazy....I'm in PAIN! She said I am just too young to be on
> >pain meds all the time and that I have already been on them for 6 months
> >so she couldn't refill it. Like I want to be on them?!? I'm still in
> >pain and if they could offer me any other solution I would gladly stop
> >taking the pain meds, but that is the ONLY thing that helps at all. She
> >said, "honestly, I don't really think anything is going to significantly
> >help you and Dr. Peterson (my gyn) concurs". Ok, so what are they
> >doing? Humoring me? What the heck (not my first choice of words I should
> >say) are they doing and why am I paying them? I'm done with them. I've
> >only got 6 pain pills left so it's going to be getting real tough in the
> >next day or so. If I am too young to be on pain meds then I am too
> >young to just accept that I will be in this awful pain forever....I
> >can't just accept that. I just can't.
> >
> >I have thought about Scranton, but honestly, I don't know how we'd swing
> >the cost. Germany is a thought...but that just scares me to go so far
> >away. So, I'm still trying to grasp onto life savers closer to home.
> >I've been in contact with a Dr. Jerry Perez down in California in the
> >Bay area. I'm hoping he might be able to help. At least with the
> >lymphatic cyst, if not the adhesions. For right now, tomorrow...I've
> >got to find a doctor who will treat this pain. It is getting to the
> >point that I can't stand it one more second....let alone weeks. They
> >are going to find me holed up in some dark, dingy hole playing with
> >voodoo dolls in little white coats. Wouldn't that be fun?!? LOLLOL I'm
> >completely joking, of course! Just had to get that out. I really am
> >getting desperate. There just has to be a way to get relief.
> >
> >I'm praying for everyone who is off on their journey to wellness....
> >
> >Hugs,
> >Susan
>


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