At Mon, 6 Nov 2000, ZIMLICKI,PAULA M wrote:
>
>Susan,
>Is there a medical school near where you live? The reason I ask is that
>often doctors at medical schools are more enlightened about pain med and
>medical schools or hospitals affiliated with them often have a pain clinic.
>If so, you might try calling them. I have been where you are now, and really
>feel for you. I wish I could do something to take away your pain. I offer
>this possibility as one more thing for you to try. Also, have you done any
>research on pain? I know there is new thinking about patients and pain med
>and perhaps you can find an article out there that will support your
>position, and you can give it to your doctors so they can be educated. I
>know as patients we should not have to do our own research, but it is
>reality that many times we do. If I come across any info about pain meds and
>doctors, I will be sure to let you know.
>Take care,
>Paula
>Paula M. Zimlicki
>mkt-pmz@womans.com
>
>> -----Original Message-----
>> From: rmasse2333@aol.com [SMTP:rmasse2333@aol.com]
>> Sent: Monday, November 06, 2000 7:51 AM
>> To: Multiple recipients of list ADHESIONS
>> Subject: Re: Completely AWFUL doc visit...I'm in a really dark place
>> right now
>>
>> Susan
>> My heart goes out to you!! I have been right where you are now. Dont
>> give up or give in!! There is hope. Try to get to a pain clinic, at
>> least they will make sure you have pain meds. Even if you have to talk
>> to your dr one more time. Once you get meds, then you can look for
>> another dr. I am going to Germany alone. It is far away from home,
>> but, I know I will come home feeling better. & the cost is less. I
>> will send a prayer for you.
>> Robin
>>
>> At Mon, 6 Nov 2000, Susan_OR wrote:
>> >
>> >Hi Everyone...
>> >
>> >I feel so alone and confused and desperate...I don't even know where to
>> >turn or what to do. I have decided that I am done with my doctor and I
>> >won't be going back. I don't think I'm going back to my gyn either...so
>> >now I get to go thru the fun experience of finding new docs. I went
>> >today and my doc prescribed Neurontin (has anyone tried this and what
>> >did you think?) and then told me how it would most likely take a long
>> >time to work, if it helped at all. So, of course, like anyone in pain
>> >would...I asked her to refill my pain meds while we were waiting for
>> >this to work. Can you already guess what the answer was? No...that's
>> >it...just no. I asked her what I was supposed to do then...just suffer?
>> >And she just looked at me like I had 3 heads. Dammit, I'm not a druggie
>> >and I'm not crazy....I'm in PAIN! She said I am just too young to be on
>> >pain meds all the time and that I have already been on them for 6 months
>> >so she couldn't refill it. Like I want to be on them?!? I'm still in
>> >pain and if they could offer me any other solution I would gladly stop
>> >taking the pain meds, but that is the ONLY thing that helps at all. She
>> >said, "honestly, I don't really think anything is going to significantly
>> >help you and Dr. Peterson (my gyn) concurs". Ok, so what are they
>> >doing? Humoring me? What the heck (not my first choice of words I should
>> >say) are they doing and why am I paying them? I'm done with them. I've
>> >only got 6 pain pills left so it's going to be getting real tough in the
>> >next day or so. If I am too young to be on pain meds then I am too
>> >young to just accept that I will be in this awful pain forever....I
>> >can't just accept that. I just can't.
>> >
>> >I have thought about Scranton, but honestly, I don't know how we'd swing
>> >the cost. Germany is a thought...but that just scares me to go so far
>> >away. So, I'm still trying to grasp onto life savers closer to home.
>> >I've been in contact with a Dr. Jerry Perez down in California in the
>> >Bay area. I'm hoping he might be able to help. At least with the
>> >lymphatic cyst, if not the adhesions. For right now, tomorrow...I've
>> >got to find a doctor who will treat this pain. It is getting to the
>> >point that I can't stand it one more second....let alone weeks. They
>> >are going to find me holed up in some dark, dingy hole playing with
>> >voodoo dolls in little white coats. Wouldn't that be fun?!? LOLLOL I'm
>> >completely joking, of course! Just had to get that out. I really am
>> >getting desperate. There just has to be a way to get relief.
>> >
>> >I'm praying for everyone who is off on their journey to wellness....
>> >
>> >Hugs,
>> >Susan
>>