Re: Adhesions and Endo

From: Marianne (MareCash@aol.com)
Thu Nov 30 11:49:11 2000


At Mon, 13 Nov 2000, suzanne wrote: >
>Hi everyone, I'm back. I came here a couple months ago and lurked &
>posted a little. This was at the point that I realized my problems
>weren't over and I suspected pelvic adhesions caused from endo. I had
>my last endo surgery 9 months ago, and within the last two months have
>had increased pain where my ovary was attached to my bowel. My ovary is
>long gone in a radical hysterectomy 1 1/2 years ago. I had another
>surgery post-hysterectomy for endo recurrance, and I have had excellent
>results for the endometriosis. I had extensive, severe endo with bowel,
>bladder, adeno, etc., as well as dense adhesions. I sometimes consider
>myself lucky that the only problem I have left is the pain in my
>hip/sciatic nerve from my endo days. But, this is my worst enemy pain.
>Out of all the pain I have had, this one is the thorn in my side. I
>also have bowel symptoms with this. This particular adhesion which is
>giving me grief is located posterior to where my bowel/ovary were
>married & has been removed twice.
>
>The only time I have had relief from these symptoms is when I was on
>bcp, pregnant or after each surgery. I am wanting another surgery, but
>know my chances of it regrowing are large. Does anyone know the
>percentage or the research regarding old adhesions reforming after
>excision surgery? What is the very best route to go regarding pelvic
>adhesions? I am on a personal quest for a pain-free life!
>
>I guess I am just realizing that pelvic adhesions can cause as much, if
>not more grief than the active endo. I thought this nightmare was over,
>somebody pinch me! Thanks everyone here for letting me vent, when I read
>all the posts here I realize I am not alone, nor will ever be alone with
>this affliction called adhesions.
>
>--
>suzanne

Suzanne

Hi. I hope you find some relief from your pain. I had TAH/BSO 1 and 1/1 years ago for severe endo. Never knew I had it - I had pelvic pain, then they found "cysts" then did a CA125 and suspected possible Ovarian C. Luckily when they opened me up they found stage four endo everywhere. Anyways, I have been feeeling fine up until three weeks ago. I have this constant dull pain in my lower left pelvis - if my ovary wasn't gone I would swear that's what it is. I finally went to my regular doc today and he has ordered CAT scan - says that can sometimes find adhesions through a CAT scan. I am of course terrified that there is something else wrong - ever since my experience I have a major cancer phobia. Anyways, can you decribe your adhesion pain? Mine pain is dull, and sometimes I can't tell if it is my pelvic bone, my groin, or my pelvis. It kindof is a pulling kind of pain, but I can't make it happen by moving. I am also having some back ache.Also feel somedays like I am having my period again! >Thanks

Marianne

--
Marianne

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