I think the idea of Should've - Could've is fantastic.. here's my input over the silly things I believed back then. Now I'd like to see them try it LOL
He Said Be Strong............ I say this comment led to anaemia !!
He Said You have PID ...... I say Nope, was Endo !!
He Said You have a normal infection ..... I say Beep.. wrong again... they left a swab in there from the operation !!!
He Said You are vomiting because you are nervous ... I say no .. no.. I definitely think that was the 25 bowel preps and blockage
He Said You have a Retroverted Uterus ... I found it was stuck to the Pelvic Wall ..
He Said You have a Pelvic Infection .... Ahem, Five Hours later, cobwebbing Adhesions attaching everything everywhere
He Said There Is nothing more we can do for you... I say my GP stopped the Morphene and found an alternative that worked for me.
I say - TRUST YOURSELF - You know your body better than anyone !!!
-----Original Message----- From: Helen Dynda <olddad66@runestone.net> To: Multiple recipients of list ADHESIONS <adhesions@forum.obgyn.net> Date: Friday, 22 December 2000 8:43 Subject: Survivor practice................................................re-posted for Mary Wade
>Dear Mary, Since your message did not appear as it "should've" -- I
>decided to re-post it for you. I like your idea of asking others to add
>to your list of "I COULD'VE/SHOULD'VE." I hope that many will respond
>with theirs as well. ( Please read my message to you -- below your
>message.) -- Helen
>
>[]]]] At Thu, 21 Dec 2000, Mary Wade wrote:
>
>Feeling good...oh so good...after my recent surgery with Drs. Reich and
>Redan. Now it just needs to stay this way! Grrrrrrrr.
>
>During this recuperation period, my mind has been working overtime
>thinkinabout the circumstances that have brought us all together here.
>Over the years, I could've/should've done SOOOO much better in
>advocating for my own care. It is tough because our problems are so
>little appreciated by the medical community. The fact that ARD is not
>widely recognized by the medical community keeps me from being bitter
>now about some of the assessments of my condition that were tossed my
>way over the years.
>
>I have been thinking about how I should've/could've followed up on all
>of these...ahem......"helpful" assessments. Here's my idea. Read
>through the following list of comments that I have received from
>professionals....mostly physicians....some physical therapists....over
>the years. I was STUpid to have let some of these assessments slide.
>But then, you know how it is when you hurt. I do know how I would
>handle this sort of drivel now, but maybe by throwing light on my own
>ineptness, this can serve to help others.
>
>Send me your ideas about how I could've/should've handled these comments
>that would not have left me stuck...for months and years....before once
>again reaching out for help.
>Get the idea? This is like a page in a workbook....a practice session in
>nudging our fellow fallible human beings, who happen to be in the
>medical profession, toward responsibility for their sometimes
>less-than-stellar dismissals of our complaints. Here goes! (I'll try to
>collect comments and put them all together in some sort of coherent
>fashion if you all send me ideas.)
>
>"You are just a tight-assed woman with a little myofascial pain."
>
>"The barium enema shows that you have the gut of an 80-year old." NOTE:
>I was 45 at the time.
>
>"You just need to get up and get moving."
>
>"All women have pelvic pain from time to time."
>
>"You have a Type A personality...more susceptible to stress."
>
>"Your problems are postural....stand up straight."
>
>"You just need to work on your abs and stretch out those tight
>hamstrings."
>
>"We don't really if the pain is physical or mental. Either way, you
>need help."
>
>"You need the pain to feel alive."
>
>"How is your relationship with your husband?"
>
>"There is a pain loop in your brain...you feel a bit of pain when you
>are stressed and you feel more stress when you feel pain. It's a
>vicious cycle. You need to break the cycle."
>
>"I have nothing to offer you."
>
>~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~
>
>Dear Mary,
>It is so good to hear that you are feeling good after your recent
>surgery with Drs. Reich and Redan at Scranton, PA. You reached out for
>help for your ARD ( adhesion-related disease ) by having your surgery
>done by two of the BEST surgeons in the world. By doing this the odds
>are in your favor for a successful recovery!! Best wishes for continued
>progress with the necessary healing that takes place following surgery!!
>
>Happy Holidays to you and your family!!
>
>With love, Helen
>