Re: Embarassing question:

From: Robin (rmasse2333@aol.com)
Tue Jun 12 09:09:18 2001


Dear Ginny At times I have a "leaky Bladder". I use what I call "pee Pads". No diaper for me!! I would advise you to go see a urologist. They may be able to help you. When I have a problem with my bladder (it is on/off) I take some meds that seem to help. Robin

At Mon, 11 Jun 2001, Ginny Halpern wrote: >
>Hi All:
>I miss talking to everyone but I have been a little preoccupied with my
>personal problems the last week or so. Some of you guys remember I was
>laid off from my job in senior management but was hoping to find work
>again, soon.
>
>I was called for an interview for a management position and despite the
>really crappy level of pain I have been in, decided to get all spiffied
>up and head out into the corporate environ again to talk with a mega
>telecom firm.
>
>I realized halfway through the interview with the General Manager of a
>billion dollar company that I was sitting in a little puddle of piddle.
>
>I guess I needn't tell you that had it not been for the fact that I had
>a raincoat with me I would probably still be sitting there, waiting for
>him to leave the office first.
>Be that as it was,
>I have a 4 pound "tumor" (non malignant but now inoprable)and adhesions
>combined, resting in the lower pelvis, where the uterus was. It must
>have grown another few ounces or somehow dropped a milimeter lower,
>because it is now riding on bladder like a broncing buck and regardless
>of how I curtail my fluid intake when I know I have to got out, I have
>NO control over "things."
>
>Is there anyone out there under the age of 90 who has found themselves
>with this rather pissy affliction thanks to ARD?? I am only 46 and not
>ready to go the Depends route.
>I have had 16 operations and somehow feel that this isn't an option. I
>know that a "nip and tuck" of the bladder is great for women who have
>cystoceles (dropped bladders or weakened bladders) but because they
>cannot remove the mass of gunk inside me they won't operate and cause
>more adhesions just to have the mass eventually fall down again.
>
>Needless to say, after that interview I have been on no others. I
>cannot even imagine schlepping off to work every day carrying a diaper
>bag..
>I know I sound like I am being trite but remember, I've had my mass for
>15 yrs and until now, except for unbearable pain and multiple
>obstructions, my mass was good to me. Besides, if I don't try to make
>light of this I will fall into a depression again, and believe me,
>that's not my first choice.
>
>I've enjoyed talking with all of you who are reaching out to me for help
>in finding either pain management doctors or surgeons who specialize in
>ARD in the Phila. or the Tri state area. I hope you will keep on
>writing.
>I am working on a package of info to distribute to surgeons and pain
>specialists in the state in an effort to introduce them to ARD and get
>them involved in this mess.
>
>Meanwhile, please tell me........am I the only one who has this? If not,
>does anyone have any thoughts?
>
>Love you all,
>Bev, haven't heard back from you recently...any more work for me to do?
>Hi Millie and Janet and Helen!
>
>Ginny


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