"Stick together," folks! We'll beat this someday
ginny
At Tue, 12 Jun 2001, Robin wrote:
>
>Dear Ginny
>At times I have a "leaky Bladder". I use what I call "pee Pads". No
>diaper for me!! I would advise you to go see a urologist. They may be
>able to help you. When I have a problem with my bladder (it is on/off)
>I take some meds that seem to help.
>Robin
>
>At Mon, 11 Jun 2001, Ginny Halpern wrote:
>>
>>Hi All:
>>I miss talking to everyone but I have been a little preoccupied with my
>>personal problems the last week or so. Some of you guys remember I was
>>laid off from my job in senior management but was hoping to find work
>>again, soon.
>>
>>I was called for an interview for a management position and despite the
>>really crappy level of pain I have been in, decided to get all spiffied
>>up and head out into the corporate environ again to talk with a mega
>>telecom firm.
>>
>>I realized halfway through the interview with the General Manager of a
>>billion dollar company that I was sitting in a little puddle of piddle.
>>
>>I guess I needn't tell you that had it not been for the fact that I had
>>a raincoat with me I would probably still be sitting there, waiting for
>>him to leave the office first.
>>Be that as it was,
>>I have a 4 pound "tumor" (non malignant but now inoprable)and adhesions
>>combined, resting in the lower pelvis, where the uterus was. It must
>>have grown another few ounces or somehow dropped a milimeter lower,
>>because it is now riding on bladder like a broncing buck and regardless
>>of how I curtail my fluid intake when I know I have to got out, I have
>>NO control over "things."
>>
>>Is there anyone out there under the age of 90 who has found themselves
>>with this rather pissy affliction thanks to ARD?? I am only 46 and not
>>ready to go the Depends route.
>>I have had 16 operations and somehow feel that this isn't an option. I
>>know that a "nip and tuck" of the bladder is great for women who have
>>cystoceles (dropped bladders or weakened bladders) but because they
>>cannot remove the mass of gunk inside me they won't operate and cause
>>more adhesions just to have the mass eventually fall down again.
>>
>>Needless to say, after that interview I have been on no others. I
>>cannot even imagine schlepping off to work every day carrying a diaper
>>bag..
>>I know I sound like I am being trite but remember, I've had my mass for
>>15 yrs and until now, except for unbearable pain and multiple
>>obstructions, my mass was good to me. Besides, if I don't try to make
>>light of this I will fall into a depression again, and believe me,
>>that's not my first choice.
>>
>>I've enjoyed talking with all of you who are reaching out to me for help
>>in finding either pain management doctors or surgeons who specialize in
>>ARD in the Phila. or the Tri state area. I hope you will keep on
>>writing.
>>I am working on a package of info to distribute to surgeons and pain
>>specialists in the state in an effort to introduce them to ARD and get
>>them involved in this mess.
>>
>>Meanwhile, please tell me........am I the only one who has this? If not,
>>does anyone have any thoughts?
>>
>>Love you all,
>>Bev, haven't heard back from you recently...any more work for me to do?
>>Hi Millie and Janet and Helen!
>>
>>Ginny