Re: To Kimmi from Linda the Kiwi!

From: Kimmi&Dave (kimmi3@mediaone.net)
Wed Nov 28 07:51:10 2001


Linda, Hugs, Sorry the trouble you are having with the pain specialist.. You know I so agree about doctor's wanting you to try this and that and do this and that, saying this may help, and the things they offer can be so painful to attempt. Some of my doctors drive me nuts, they are constantly having me try new treatments, diets,exercises, 1/2 the time they put me in more pain than I was already in, but if I don't try this stuff I am not following orders and cannot keep on my pain medication. Did you find any relief with the Meth at all? I know quite a few people who had good relief with it, and was one of the drugs I was considering asking about since the Demerol is no longer working that great.

I am really glad to hear your GP is one your side, I cannot stand my GP at all, but the pain clinic cannot write out long term scrips anymore because of the amount of how many they have, not enough docs ect.. Transferred all scrips to be written by Primary, but the medication is still over seen by the pain clinic they just don't write them anymore. I was on the verge of dropping my GP because he doesn't get chronic pain at all, but now afraid to drop him and try and get a new primary who will be willing to write long term scrips. Feel like you walk a thin rope all the time with these doctors..Gentle hugs hon Kimmi

> ----- Original Message -----
From: J&L VERMEY To: Multiple recipients of list ADHESIONS Sent: Tuesday, November 27, 2001 2:48 AM Subject: To Kimmi from Linda the Kiwi!

Hi Kimmi!

How's your day been? How're you feeling?

You know, despite the fact that I've had some pretty horrible pain today, I'm happy to report that I've had a pretty good day, my doctor's visit was good, and I left feeling much happier. I've been worrying about what my options were about pain relief - since I'm in a bit of a clinch with my Pain Specialist - over pain relief. He wants me to stop taking all forms of pain relief - when all I set out to do was to drop my methadone. Luckily my GP is of the opinion that I need a suitable pain medication, and he's happy with me using morphine - Dr Robinson knows me pretty well by now, he knows I don't bull-shit him about anything, and that I do not say that things are bad, and that I'm not coping as far as my pain is concerned, lightly. And he supports my rights to pain relief, plus he consults me before deciding which way he's going to go, where as my Pain Specialist expects me to do as he orders. Sometimes he can be quite understanding, even supportive, but just lately, it's like he doesn't give a stuff. Just says to me "Hang in there Kiddo!" Sometimes it would be nice to hear a note of compassion from those people from my hospitals Pain Clinic.

I really find it so hard to take so called well meant advice from people who've never had more pain then a mild headache, and who really don't have any clue as to what I go through, having pain day in day out.

And it's so nice to talk to people who also live with pain, day in day out.

Hope you're doing all right.

Look after yourself!

Linda (Lin to my friends)


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