Re: I've finally lost hope - what do I do now?

From: Millie (milliem@citlink.net)
Mon Sep 23 12:50:29 2002


Michelle, I am so sorry you are in pain, again. If they could only find a 100% cure for adhesions... I do know that repeat surgeries are not the answer. I can only say that until there is a cure for adhesions, I won't have more surgery, unless it's an emergency. After what I have gone through, and after reading so many stories on the quilt, I AM thinking twice. Very scary. Millie.

>----- Original Message -----
From: "Michelle" <anonymous@medispecialty.com> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.medispecialty.com> Sent: Monday, September 23, 2002 11:16 AM Subject: I've finally lost hope - what do I do now?

> Hello all,
> I posted once before, but I must have picked a bad time - no one
> responded. At first I was hurt, but after reading more posts I have
> come to appreciate how generous you all are in sharing your caring,
> knowledge and your time even though you all are in pain and that you
> can't possibly answer every post! Before I begin my rambling self
> pitying story, I offer my sincere thanks for this forum & all who
> contribute.
> I too suffer from the relentless pain that so many of you speak of.
> I've had numerous pelvic/abdominal surgeries, tests, physical therapy,
> biofeedback, acupuncture, radiofrequency, nerve blocks - you name it!
> I take a ton of meds - DAILY dose = 18 Neurontin, 3 Gabitril, 3
> Oxycontin, OxyIR as needed for breakthrough & 2 Wellbutrin - they help
> control the pain, but don't eliminate it.
> I am also homebound with very limited activity.
> I feel best when I lay flat & still, take all my meds & either eat
> nothing or very little.
> To make a long story short - I finally found you all and through this
> site and links found on this board, I have educated myself about ARD and
> RSD (CRPS).
> Throughout this whole nightmare I've remained hopeful that if I couldn't
> be completely pain free, I could at least find some way to control the
> pain enough to be reasonably "normal" again and maybe even go back to
> work (and play).
> My last surgery was with Drs Reich & Redan in Scranton, PA. These are
> fantastic doctors - particularly Dr. Reich. It took them just a few
> hours of surgery to perform a miracle!
> For the first time since this all began - I was TOTALLY pain free!!!!!
> Unfortunately it only lasted six days and then the pain came back in
> full force.
> So here I am - still laying on the sofa taking buckets of pills. I've
> been to the best and they did their best - I just wasn't one of the
> lucky ones. There's nothing left to hope or strive for and I can feel
> depression, anger and despair creeping in and I don't know how to stop
> it.
> What do I do now?
>
> --
> Michelle
>


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