Re: I've finally lost hope - what do I do now?

From: Rita Steele (steelerita@yahoo.com)
Mon Sep 23 15:19:15 2002


Michelle, If you can afford Drs. R&R, you should be able to get yourself to Germany ASAP! E-mail Helen Dynda, she has loads of info. on this. Don't give up! We are hear to support you. If I had the resources I would go to Germany, now. Take Care, Rita --- Shawna French <frenchysha@yahoo.com> wrote: >
> Dear Michelle, I am so sorry to hear you have gone
> through soooo much, I too am on alot of meds and to
> lay in bed seems the best, non movement, when I went
> Louisiana my specialist did the best also and I was
> actually pain free for 8 months then wham back in
> bed I went, know this we do care about you and I
> will pray for pain free days for you! Any time you
> want to e-mail me feel free I am here to listen and
> remember I deeply care about your pain!! Shawna F.
> Michelle wrote: Hello all,
> I posted once before, but I must have picked a bad
> time - no one
> responded. At first I was hurt, but after reading
> more posts I have
> come to appreciate how generous you all are in
> sharing your caring,
> knowledge and your time even though you all are in
> pain and that you
> can't possibly answer every post! Before I begin my
> rambling self
> pitying story, I offer my sincere thanks for this
> forum & all who
> contribute.
> I too suffer from the relentless pain that so many
> of you speak of.
> I've had numerous pelvic/abdominal surgeries, tests,
> physical therapy,
> biofeedback, acupuncture, radiofrequency, nerve
> blocks - you name it!
> I take a ton of meds - DAILY dose = 18 Neurontin, 3
> Gabitril, 3
> Oxycontin, OxyIR as needed for breakthrough & 2
> Wellbutrin - they help
> control the pain, but don't eliminate it.
> I am also homebound with very limited activity.
> I feel best when I lay flat & still, take all my
> meds & either eat
> nothing or very little.
> To make a long story short - I finally found you all
> and through this
> site and links found on this board, I have educated
> myself about ARD and
> RSD (CRPS).
> Throughout this whole nightmare I've remained
> hopeful that if I couldn't
> be completely pain free, I could at least find some
> way to control the
> pain enough to be reasonably "normal" again and
> maybe even go back to
> work (and play).
> My last surgery was with Drs Reich & Redan in
> Scranton, PA. These are
> fantastic doctors - particularly Dr. Reich. It took
> them just a few
> hours of surgery to perform a miracle!
> For the first time since this all began - I was
> TOTALLY pain free!!!!!
> Unfortunately it only lasted six days and then the
> pain came back in
> full force.
> So here I am - still laying on the sofa taking
> buckets of pills. I've
> been to the best and they did their best - I just
> wasn't one of the
> lucky ones. There's nothing left to hope or strive
> for and I can feel
> depression, anger and despair creeping in and I
> don't know how to stop
> it.
> What do I do now?
>
> --
> Michelle
>
> http://www.adhesions.org/forums/listcmds.htm
>

http://sbc.yahoo.com


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