Re: Why is this Disease So Difficult?

From: Lynn Creacy (anonymous@medispecialty.com)
Mon Sep 23 17:16:54 2002


At Mon, 23 Sep 2002, anonymous wrote: >Dear Taylor,

The drs don't treat us because all of our test comes out normal ane they have evidently not kept up with new medical issues. There is a letter you need to print out explaining what ARD is and there are also alot of information on the rights of patients to get proper pain treatment. Print these out and go to a pain management clinic or to the ER. They have to treat you with respect so if you have to go to the top of the hospital medical director then do it. Take control of your life. If your dr is not helping then go to another and keep going until you find a good one. Your life is worth fighting for. Do not let these egotistacle drs get to you.

Lynn

>Let me ask this....if you have Cancer, you're treated with
>respect,right?? You get the pain management without the doc making you
>feel like a criminal. Why is it so damn hard to treat someone with
>ARD???? Is this so darn misunderstood that the medical community shuns
>it?? Why? Is it not resonable for someone to suffer without an exact
>cause? ( Adhesions are the invisible menace right?) I have been reading
>all of your posts and I am so angry that some of these damn doc are so
>ignorant with themselves, could care less if I or anyone else suffer so
>bad that it gets to the point of wanting to take your own life.(which is
>the point I am at right now) I cannot trust my doc enough even to pick
>up the phone right now and beg him to help because I am in so much pain.
>Pain that right now has got me seriously questioning my quality of life.
>I NEVER ASKED FOR THIS!!!! I NEED HELP!!!! And I cannot find it
>anywhere!!! Yet emergency rooms are there for emergency's, well I think
>excruciated pain is an emergency, but yet they say drink water. Take
>Tylenol...hahahaha!!!! Tylenol!!!! Oh ok I have only been on Oxy for
>year, but tylenol will work??? Sure!!! I am so damn sorry for my rant, I
>know everyone here has the same prob and I am in no way trying to make
>me worse than any of you. I feel for you all. I think the fact that I
>cannot take this pain anymore and nothaving the help I need is
>frustrading. I'd be surprised if I made it threw the night, it is THAT
>BAD!!!!
>Thanks for letting me vent.
>Taylor

--
A new friend

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