Re: Why is this Disease So Difficult? to Taylor

From: Robin M (rmasse2333@aol.com)
Tue Sep 24 13:46:26 2002


Dear Taylor I hope that you are a little better today. Venting is important, it can make you feel a little better just having someone to talk to that truly understands. My first surgery for adhesions was in 1985, but the last 5 years have been the worst. I am in the process of going back to Germany. You will get a lot of support & love here, keep coming back. Germany seems to be our best hope right now with the spray gel. You will find some other posts on the board about it. If you don't find the answers your looking for, ask more questions. You can never have too much information! robin M

At Mon, 23 Sep 2002, anonymous wrote: >
>Let me ask this....if you have Cancer, you're treated with
>respect,right?? You get the pain management without the doc making you
>feel like a criminal. Why is it so damn hard to treat someone with
>ARD???? Is this so darn misunderstood that the medical community shuns
>it?? Why? Is it not resonable for someone to suffer without an exact
>cause? ( Adhesions are the invisible menace right?) I have been reading
>all of your posts and I am so angry that some of these damn doc are so
>ignorant with themselves, could care less if I or anyone else suffer so
>bad that it gets to the point of wanting to take your own life.(which is
>the point I am at right now) I cannot trust my doc enough even to pick
>up the phone right now and beg him to help because I am in so much pain.
>Pain that right now has got me seriously questioning my quality of life.
>I NEVER ASKED FOR THIS!!!! I NEED HELP!!!! And I cannot find it
>anywhere!!! Yet emergency rooms are there for emergency's, well I think
>excruciated pain is an emergency, but yet they say drink water. Take
>Tylenol...hahahaha!!!! Tylenol!!!! Oh ok I have only been on Oxy for
>year, but tylenol will work??? Sure!!! I am so damn sorry for my rant, I
>know everyone here has the same prob and I am in no way trying to make
>me worse than any of you. I feel for you all. I think the fact that I
>cannot take this pain anymore and nothaving the help I need is
>frustrading. I'd be surprised if I made it threw the night, it is THAT
>BAD!!!!
>Thanks for letting me vent.
>Taylor


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