Re: Don't Know what to do

From: clare (csheedy@netcom.ca)
Wed Oct 23 17:17:05 2002


Dear Robyn:

Helen's quite right (as usual) on this. :o) After so many surgeries I think anyone would have adhesions...sometimes surgeons refuse to discuss adhesions that in their personal opinion shouldn't cause pain. Remember, some people have adhesions and don't have any pain, so surgeons often have preconceived ideas as to what adhesions in which locations cause pain.

Was the endo removed via excision or was a laser used? It often takes an endo specialist to remove endo sucessfully, as well as to recognize the different appearances of endo. Robyn, I'm no Dr, but as Helen says get your records, and then get a second opinion if you feel your pain is intolerable. The sitting pain really does remind me of both endo and adhesions.

A colonoscopy will rule out some other potential pain causes.

You know, before I had my last laparoscopy, I was afraid that my surgeon would tell me that there was nothing wrong, and the conclusion would be that this was all in my head. I have a bit of an inkling as to how you may be feeling. In my situation, he lasered some endo, performed a LUNA procedure, noted that there were adhesions from my ascending colon to the peritoneum, and spread an adhesion that had bound my falopian tube to the fossa. He also noted that he couldn't get at all the endo because of adhesions. After that, he told me that none of these could possibly be causing me pain. He inferred the feared conclusion....

I'm not sure why I'm telling you all this - I guess I just want you to know that Drs are often cold, and sometimes they are just plain wrong. Until they or someone they love experience the despair that being told that there is really no cause of your pain, they'll continue to use this as an out.

Robyn, don't despair. Wishing you painfree moments, hours and days.

--
Clare

At Wed, 23 Oct 2002, RobynD423 wrote: > >Hi Everyone, >I had my lap yesterday to look for adhesions and I can't believe it but >he didn't find any. Now I'm lost - it's always been adhesions before. >Now I have no idea what's wrong with me. Why have a been in so much >pain and what's going on with my colon. I have no idea. Any feedback >as to what could be wrong since it wasn't adhesions this time. My >regular doctor when I first went to him decided to go the adhesion route >first and then the colon - meaning I need to get a colonoscopy >scheduled. I've been of work since Sept 30. It's hard for me to sit >for long periods of time. Any feedback would be so appreciated. >Thank you. > >-- >Robyn >


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