Thank you for giving me a little more knowledge of how my husband feels. I thank God every day for my family. I do not know what I would do without their support. I can see the stress and pain it has caused my husband who is my rock. He is the type of person (like myself), to find the problem and fix it. This is something that we can not do and it took a long time for both of us to realize this and to try not to beat ourselves up because we can't fix it. We appreciate you sharing with us what is very painful for you. My prayer is that we will be able to fix this disease soon.
Lynn
>As she was wheeled out of her last surgery I witnessed a copious amount
>of tears coming from her face as once again her illness was validated
>and hopefully "fixed". I was very humbled and shamed by the lack of
>human compassion my wife in the past received from everyone around her,
>I now first hand got to "SEE" the devistation she deals with daily.
>As a result of this little understood condition and the lack of
>effective treatment( due in part to lack of funding for research), my
>wife and I are financially ruined.
>She desperatly wants to work but can not, my job just doesn't cover all
>the costs and most insurance companies can't or will not help because
>this is not a recognized "LOU GHERIG" type of disease.
>I could go on forever about the excruciating pain my wife endures as a
>result of ARD but I will not. As I stated earlier, my intent is to help
>educte and promote awareness of Ard and hopefully to help people
>understand that this ia a real and debilitating disease. much more
>common than generally known. Thank you and sincerely, Mr. Ricky French
-- A new friend