Re: At my wits end
From: Ann Marie (blueis88@optonline.net)
Tue Aug 23 21:53:51 2005
Melody,
First, I completely understand your situation as I am sure a lot of
people here do. let me start by saying maybe it is time for a new PCP.
Personally I have been through so many doctors. I had some think I
needed mental help, some think I was a drug addict looking for pain
meds. One doc who first said adhesions to me, was a friend of my
family. His mother and my mother were very good friends. (His mother
passed away). He had done surgery on me and saw the extent of my
adhesions. He even took pictures of them. He had never seen adhesions
so bad in his career and neither did anyone in the practice he belonged
with. (About 20 docs). Well, I called his office for pain pills, I
again was at my wits end. I had the hardest time getting through to
him. It is a practice of 5 offices around the area. He worked out of 3
of the offices. There was one main office and no matter what office you
were tryiong to reach you got the main office. I tried for 2 days to
get him on the phone or get someone to call in a script for me, he
finally called me and said this was the last script he was calling in
for me. I didn't need the pain meds. I have never spoken to him since.
All I can say is, if his mother was alive, she would kill him for the
way he treated me. Time for another new doc for me. Finally found the
doc of my dreams (if you can say that Dr. Right).
My adhesions always seem to be everywhere in my abdomen. The organs
that are left are in strange places and stuck to different things
including the abdominal wall. Dr. Right did surgery in April and all
was cleaned up and my organs wrapped in a sort of shrink wrap. The pain
of course has started up again and every day seems to be a little worse
than the day before. When I went to the doc last week for a follow-up
visit, it was to be the last time I saw him, but when I said the pain
was comming back, he decided to see me again in 4 months. As of now I
can deal with it.
I also see a pain management doc. He is Dr. Right #2. I was
originally on percocet. It wasn't working. He told me because percocet
does not work on this kind of pain very well. I am currently on
Dilaudid and Methadone and Actiq pops for breakthrough pain. On all of
this, I do pretty good. I am able to function and get things done. I
am currently not on disability for this but from January to March of
this year I was on disability from my job. When I found out I had no
job to go back to I stopped the disability and started unemployment. My
employer would have kept me working on disability if I wanted. Just as
long as he didn't have to pay me. Unemployment was more $ for me.
Unemployment should be running out in a couple of weeks and if I don't
work, we will loose the house. With 2 kids, not a good thing, so I have
no choice but to work. If I was to go on disability through the state,
I will definately loose the house. Not enough $.
Why am I telling you all this? This is why I don't post much. I go on
and on and on. I guess I feel like you guys are the only ones who can
understand.
I wish we could do some sort of a convention thing where we all get
together for a weekend. I would really love to meet you guys.
Take care Melody and I hope in all of my blabbering here I have been
able to help even just a little.
--
Ann Marie
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