Re: Zelnorm Episode has me scared

From: kathy (kathymorelock@knology.net)
Thu Jul 6 08:55:36 2006


Hi Natalie,

I hope by the time you read this you will already be feeling much better. If not, it sounds like you need to have a surgeon look around again with a laparoscope. I'm sure you don't want more surgeries. Believe me, I'm facing my sixth open procedure in a few days to reverse an illiostoy.

It sounds like you need to have adhesions cut or a bowel loop unstuck. Unfortunately, that can only be done surgically if time and a liquid diet won't work. Adhesions sometimes unstick on their own if you fast and can stand suffering for a few days. If the bowel gets too knotted though, you could be in big trouble. You should probably go to the E.R. They will give you fluids and get you out of pain. This worked with me for a few months. Eventually though, they ended up taking part of the small bowel. It got stuck again. You may already know all this.

You don't want a bowel obstruction to compromise the blood supply. If that happens you only live about 36 hours without emergency surgery. Surgery is best done after a prep not as an emergency resection. Doctors are reluctant to operate on you because of your history. Get a good colorectal surgeon and let him take a look. I'll be praying for u. I'm not a doctor but that's my opinion. At Fri, 30 Jun 2006, Natalie wrote: >
>Okay, I finally went back to the Gastro as I am getting really tired of
>restricitng my diet and eating 10-12 stool softeners a day.
>
>Brief history: 20 years of bowel problems, endometriosis (coincinding
>with the bowel problems), multiple surgeries, adhesions, you all know
>the story.
>
>Had a CAT scan on 6/19/06 which showed mildly prominent small bowel
>loops but no overt obstruction so MD deemed Zelnorm safe to try.
>
>I have been taking it since Monday and being REAL careful with my diet,
>especially since I stopped the stool softener. First day was rough with
>severe headache and diahrea which has improved.
>
>Last night I had about 45 minuts of fairly intense pain...a real
>burning, gnawing pain that I've had in the past in my lower mid
>abdominal area with mild nausea. Pain radiates to my back and left
>side. I have had it many times in the past but have managed to avoid it
>with careful diet and stool softeners and taking Femara for endo symptom
>control. It is always much worse when I am lying down and eating seems
>to be the trigger. Lots of tossing and turning and could not lay on my
>abdomen at all.


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