Re: LYRICA
From: vhamm01@comcast.net
Mon Nov 12 11:35:46 2007
--
Dear Donna:
I am so glad you've had relief from Lyrica. I have been taking it too -- only it makes me sleepy and dizzy -- not good side effects. Also, I have found that it works well on the pain emanating from a damaged nerve in my elbow -- and I mean the relief is fantastic -- but less well on the pelvic adhesions. However, I'm going to continue with it in the hope that adjusting the dosage will be what I need.
Thanks,
Val
-------------- Original message ----------------------
From: "IAS Admin (Tracy)" <tracy.joslin@adhesions.org>
-------------- Original message ----------------------
> Sender: donnacboggs@insightbb.com (Donna B)
> -------------- Original message ----------------------
> Subject: LYRICA
>
> A friend who suffers from fibromyalgia told me about Lyrica - I asked my
> Doc to prescribe and he did - high dose has left me a bit loopy (150mg
> 2xday) and I have asked for lower dosage - I started taking it a couple
> of days before my appointment with my most beloved Surgeon (Dr. Max
> Hammer, Springfield Illinois) to schedule yet another surgery to take
> down adhesions.
>
> I told him about the Lyrica and the FANTASTIC RESULTS that I had with
> just two doses and his face lit up and he said lets take another look at
> your belly - he poked around and patted me here and there and asked a
> bunch of questions and then told me that perhaps, just perhaps a nerve
> ending have become trapped in the scar tissue of a previous surgical
> incision and that he wanted me to go for a diagnostic nerve block as
> soon as possible.
>
> I have been in pain for 25 years. Yup. It all started when I had my
> tubes tied April 1982. Then endometriosis diagnosis and surgery after
> surgery for "treatment" then surgery after surgery for lysis of
> adhesions.
>
> Yes, I can feel it when my colon is attached to my abdominal wall. Yes,
> I occasionaly have a bowel obstruction caused by adhesions and
> subsequent inflammation (which came first, the chicken or the egg? the
> adhesions or the inflammation - question of the year).
>
> BUT - the burning, throbbing, stabbing, pain that zings down my leg,
> leaves my foot numb and burning, doubles me over and make cry out, puts
> me in bed for days and weeks at a time is MOST DEFINATELY NERVE PAIN!
>
> For YEARS I have KNOWN that adhesions create tissue that becomes venous.
> There is no place in our bodies that have veins and arteries and doesn't
> have nerves. Therefore, if this tissue that is created by adhesions
> becomes venous, then doesn't it just stand to reason that NERVES ALSO
> GROW TO "SERVE" THE NEW TISSUE JUST AS THE VEINS DO? Makes sense to me.
>
> IF THE PAIN THAT WE ALL ARE FEELING IS NERVE PAIN, THE PAIN FROM
> ADHESIONS IS NERVE PAIN AND LYRICA CAN REDUCE THAT PAIN THEN DON'T WE
> HAVE AN ANSWER?
>
> Neurontin was out of the question for me - too many scary side effects.
> Narcotics are a bore - they don't really work, make you constipated and
> stoned, are expensive and you have to argue with Doctors to get enough
> to keep you satisfied and they are addictive. I refuse to become a drug
> addict!
>
> Drug trials for the use of Lyrica for adhesion pain are in the works -
> check out http://www.clinicaltrials.gov Indentifier # NCT00310765
>
> I am praying and hoping that the study shows significant reduction in
> adhesion pain with the use of Lyrica.
>
> The side effects are minimal - go to the site and check it out - just
> google lyrica - and IF this drug is shown as a positive for adhesion
> pain and IF the word gets out and when we ask our physicians for a
> prescription for this medication and IF it works for us and we report
> the success to our physicians and to Pfizer THEN the FDA approval will
> go through allowing pfizer to advertise this drug and spread the word,
> continue their research with the yummy profits gained from all of us
> adhesion folks buying their product and they will continue to research
> adhesion pain and keep tweaking their drugs until we have an answer that
> has minimal side effects.
>
> This is the most hopeful I have felt in 25 years. I feel like I have
> been given my life back.
>
> PLEASE PLEASE PLEASE talk to your physician about prescribing this drug,
> try it and report back to the Doc. The more this drug sells, the price
> point will be reduced.
>
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