"Of course, I had hoped to discuss this with the so-called endo and pelvic pain gyno in Edina last month but he weakly said 'Usually endo is seen during surgery'. If he was referring to my rushed, poorly done vaginal hysterectomy 11 years ago, by a doctor who refused to sit down for any discussion with me afterwards, he is sadly mistaken but I didn't dare bad-mouth another doctor to him. Also, I have heard that some women actually develop endo as a result of a hysterectomy!"
I had a hysterectomy in 2005 and no endo was reported. When I had surgery seven months later due to pain, they cut adhesions and found endo all over my abdomen and on my diaphragm. I bleed internally after the hyster and I assume that all that blood that sat in my belly for a long time before it was absorbed carried the endo up. That was my experience.
Jennifer
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From: adhesions@adhesions.org on behalf of jetstamp
-- ________________________________ Sent: Wed 3/4/2009 10:41 PM To: Multiple recipients of list ADHESIONS Subject: Re: Update from surgery on March 3 2009At Wed, 4 Mar 2009, jetstamp wrote: > >At Wed, 4 Mar 2009, jetstamp wrote: >> >>At Wed, 4 Mar 2009, Kris wrote: >>> >>>Hi, all! I just got home from the hospital after my adhesion surgery... Additionally, he found a golf ball size "chocolate >>>cyst" on my right ovary. The >>>right sided areas where he removed the adhesions from were the areas I >>>was having most of my pain. I also had pain on my lower right side, >>>which is explained by the ovarian cyst. The surgeon told my mom after >>>the surgery that both the adhesions and the cyst cause extreme pain, >>>Don't we all know that too well??? I thought of all of you who suffer from this and >>>was wishing each of you were there having surgery as well! I'll keep >>>posting to let you know how things progress....
Kris
Kris, Oops- just posted a reply but put it in the box at bottom of page so my content was not displayed- I sometimes forget that this box at the bottom of the page is not the reply area like it is on another site.I hate that we can't edit 'mis-posts'!
Glad to see you got to go home soon.
Your symptoms sound a lot like mine- mostly lower right-sided but have some general tightness issues from pelvis pretty much up to the neck.
When you mention the chocolate-cyst- I wonder if that is related to endometriosis? Areas of endo can vary widely in color- from pink to black- depending on how long the endo has been there.
I often wonder if endo is part of my whole thing- along with other causes of adhesions as well. I sometimes wonder if I might have had at least the internal endo- adenomyosis-before my injury and think that maybe somehow the endo got out of the uterus then which explains the widespread tightness that developed over the next few weeks afterward.
Of course, I had hoped to discuss this with the so-called endo and pelvic pain gyno in Edina last month but he weakly said 'Usually endo is seen during surgery'. If he was referring to my rushed, poorly done vaginal hysterectomy 11 years ago, by a doctor who refused to sit down for any discussion with me afterwards, he is sadly mistaken but I didn't dare bad-mouth another doctor to him. Also, I have heard that some women actually develop endo as a result of a hysterectomy!
I've read a few books, a recent one by Dr. Cook in Oregon called '100 Questions About Endometriosis' and a couple by Mary Lou Ballweg who is president of the Endometriosis Association. There are a LOT of myths about endo and as a result many women go undiagnosed and treated.
I will keep toying with the idea of making an appointment with Dr. Johnson, but am still gun-shy, especially since I always thought that you needed to be referred to a surgeon. Maybe if I just tell him that nobody I've seen seems to have any concept of adhesions- except for 2 physical therapists and an x-ray doctor, he would accept that explanation!
I thought about you all day Tuesday while at my job near Mpls.-St. Paul International Airport- thinking about how not too many miles away, someone was finally being treated for this stuff!
It was great to read your eagerly awaited post!
Joan >>> >>>-- >>>