-- Kris >Jetstamp, > >"Of course, I had hoped to discuss this with the so-called endo and >pelvic pain gyno in Edina last month but he weakly said 'Usually endo is >seen during surgery'. If he was referring to my rushed, poorly done >vaginal hysterectomy 11 years ago, by a doctor who refused to sit down >for any discussion with me afterwards, he is sadly mistaken but I didn't >dare bad-mouth another doctor to him. Also, I have heard that some >women actually develop endo as a result of a hysterectomy!" > >I had a hysterectomy in 2005 and no endo was reported. When I had surgery seven months later due to pain, they cut adhesions and found endo all over my abdomen and on my diaphragm. I bleed internally after the hyster and I assume that all that blood that sat in my belly for a long time before it was absorbed carried the endo up. That was my experience. > >Jennifer > >________________________________ > >________________________________ >From: adhesions@adhesions.org on behalf of jetstamp > >-- >________________________________ >Sent: Wed 3/4/2009 10:41 PM >________________________________ >To: Multiple recipients of list ADHESIONS >Subject: Re: Update from surgery on March 3 2009 > >At Wed, 4 Mar 2009, jetstamp wrote: >> >>At Wed, 4 Mar 2009, jetstamp wrote: >>> >>>At Wed, 4 Mar 2009, Kris wrote: >>>> >>>>Hi, all! I just got home from the hospital after my adhesion surgery... Additionally, he found a golf ball size "chocolate >>>>cyst" on my right ovary. The >>>>right sided areas where he removed the adhesions from were the areas I >>>>was having most of my pain. I also had pain on my lower right side, >>>>which is explained by the ovarian cyst. The surgeon told my mom after >>>>the surgery that both the adhesions and the cyst cause extreme pain, >>>>Don't we all know that too well??? I thought of all of you who suffer from this and >>>>was wishing each of you were there having surgery as well! I'll keep >>>>posting to let you know how things progress.... > >Kris > >Kris, Oops- just posted a reply but put it in the box at bottom of page >so my content was not displayed- I sometimes forget that this box at the >bottom of the page is not the reply area like it is on another site.I >hate that we can't edit 'mis-posts'! > >Glad to see you got to go home soon. > >Your symptoms sound a lot like mine- mostly lower right-sided but have >some general tightness issues from pelvis pretty much up to the neck. > >When you mention the chocolate-cyst- I wonder if that is related to >endometriosis? Areas of endo can vary widely in color- from pink to >black- depending on how long the endo has been there. > >I often wonder if endo is part of my whole thing- along with other >causes of adhesions as well. I sometimes wonder if I might have had at >least the internal endo- adenomyosis-before my injury and think that >maybe somehow the endo got out of the uterus then which explains the >widespread tightness that developed over the next few weeks afterward. > >Of course, I had hoped to discuss this with the so-called endo and >pelvic pain gyno in Edina last month but he weakly said 'Usually endo is >seen during surgery'. If he was referring to my rushed, poorly done >vaginal hysterectomy 11 years ago, by a doctor who refused to sit down >for any discussion with me afterwards, he is sadly mistaken but I didn't >dare bad-mouth another doctor to him. Also, I have heard that some >women actually develop endo as a result of a hysterectomy! > >I've read a few books, a recent one by Dr. Cook in Oregon called '100 >Questions About Endometriosis' and a couple by Mary Lou Ballweg who is >president of the Endometriosis Association. There are a LOT of myths >about endo and as a result many women go undiagnosed and treated. > >I will keep toying with the idea of making an appointment with Dr. >Johnson, but am still gun-shy, especially since I always thought that >you needed to be referred to a surgeon. Maybe if I just tell him that >nobody I've seen seems to have any concept of adhesions- except for 2 >physical therapists and an x-ray doctor, he would accept that >explanation! > >I thought about you all day Tuesday while at my job near Mpls.-St. Paul >International Airport- thinking about how not too many miles away, >someone was finally being treated for this stuff! > >It was great to read your eagerly awaited post! > >Joan >>>> >>>>-- >>>>