Re: Update from surgery on March 3 2009

From: Kris (krisl1204@yahoo.com)
Thu Mar 5 07:18:31 2009


At Thu, 5 Mar 2009, Sinski, Jennifer B. Blevins wrote: > Hi Joan! I put posts at the bottom sometimes, too! When i got home from the hospital, I looked up chocolate cysts. Lo and behold, it said they are caused by by endo. The article went on to say that they can cause adhesions, particularly if they rupture, which can lead to pelvic pain!! Dr. Johnson said I need to have that ovary out because I'm so cyst prone and he said it just didn't look good, so I'll do it as soon as I can. I can't encourage you enough to see Dr. Johnson. He really won't care that no doctor referred you to him. Bring all your records. He will listen and make his best recommendation. If he feels that surgery can help, he'll do it. He reallly understands the pain of adhesions. He told my mother that when he spoke to her and he told me that after my surgery. I read the notes that my mom wrote down during her conversations with him. She noted that both the adhesions and the cyst cause extreme pain. He told me there were adhesions all over the areas that I had the pain. He really gets it! He is so nice and compassionate. I know how hard it is to keep being let down by doctors. I hope you can find a way to meet with him. Thank you so much for thinking of me that day. I really did wish i could bring all of my fellow sufferers into the OR that day!I am feeling better again today. The surgical pain is still there, but improving. i don't feel the usual adhesion pain, nausea and just general crappy feeling that I've had every day. Joan, since you and I live so near one another, we could get together and meet in person sometime if you'd like to talk more. Please email me at my email addressof krisl1204@yahoo.com if you'd like to do that. Hang in there!

--
Kris
>Jetstamp,
>
>"Of course, I had hoped to discuss this with the so-called endo and
>pelvic pain gyno in Edina last month but he weakly said 'Usually endo is
>seen during surgery'.  If he was referring to my rushed, poorly done
>vaginal hysterectomy 11 years ago, by a doctor who refused to sit down
>for any discussion with me afterwards, he is sadly mistaken but I didn't
>dare bad-mouth another doctor to him.  Also, I have heard that some
>women actually develop endo as a result of a hysterectomy!"
>
>I had a hysterectomy in 2005 and no endo was reported.  When I had surgery seven months later due to pain, they cut adhesions and found endo all over my abdomen and on my diaphragm.  I bleed internally after the hyster and I assume that all that blood that sat in my belly for a long time before it was absorbed carried the endo up.  That was my experience.
>
>Jennifer
>
>________________________________
>
>________________________________
>From: adhesions@adhesions.org on behalf of jetstamp
>
>--
>________________________________
>Sent: Wed 3/4/2009 10:41 PM
>________________________________
>To: Multiple recipients of list ADHESIONS
>Subject: Re: Update from surgery on March 3 2009
>
>At Wed, 4 Mar 2009, jetstamp wrote:
>>
>>At Wed, 4 Mar 2009, jetstamp wrote:
>>>
>>>At Wed,  4 Mar 2009, Kris wrote:
>>>>
>>>>Hi, all! I just got home from the hospital after my adhesion surgery...  Additionally, he found a golf ball size "chocolate
>>>>cyst" on my right ovary.    The
>>>>right sided areas where he removed the adhesions from were the areas I
>>>>was having most of my pain.  I also had pain on my lower right side,
>>>>which is explained by the ovarian cyst.  The surgeon told my mom after
>>>>the surgery that both the adhesions and the cyst cause extreme pain,
>>>>Don't we all know that too well???  I thought of all of you who suffer from this and
>>>>was wishing each of you were there having surgery as well! I'll keep
>>>>posting to let you know how things progress....
>
>Kris
>
>Kris, Oops- just posted a reply but put it in the box at bottom of page
>so my content was not displayed- I sometimes forget that this box at the
>bottom of the page is not the reply area like it is on another site.I
>hate that we can't edit 'mis-posts'!
>
>Glad to see you got to go home soon.
>
>Your symptoms sound a lot like mine- mostly lower right-sided but have
>some general tightness issues from pelvis pretty much up to the neck.
>
>When you mention the chocolate-cyst- I wonder if that is related to
>endometriosis? Areas of endo can vary widely in color- from pink to
>black- depending on how long the endo has been there.
>
>I often wonder if endo is part of my whole thing- along with other
>causes of adhesions as well.  I sometimes wonder if I might have had at
>least the internal endo- adenomyosis-before my injury and think that
>maybe somehow the endo got out of the uterus then which explains the
>widespread tightness that developed over the next few weeks afterward.
>
>Of course, I had hoped to discuss this with the so-called endo and
>pelvic pain gyno in Edina last month but he weakly said 'Usually endo is
>seen during surgery'.  If he was referring to my rushed, poorly done
>vaginal hysterectomy 11 years ago, by a doctor who refused to sit down
>for any discussion with me afterwards, he is sadly mistaken but I didn't
>dare bad-mouth another doctor to him.  Also, I have heard that some
>women actually develop endo as a result of a hysterectomy!
>
>I've read a few books, a recent one by Dr.  Cook in Oregon called '100
>Questions About Endometriosis' and a couple by Mary Lou Ballweg who is
>president of the Endometriosis Association.  There are a LOT of myths
>about endo and as a result many women go undiagnosed and treated.
>
>I will keep toying with the idea of making an appointment with Dr.
>Johnson, but am still gun-shy, especially since I always thought that
>you needed to be referred to a surgeon.  Maybe if I just tell him that
>nobody I've seen seems to have any concept of adhesions- except for 2
>physical therapists and an x-ray doctor, he would accept that
>explanation!
>
>I thought about you all day Tuesday while at my job near Mpls.-St.  Paul
>International Airport- thinking about how not too many miles away,
>someone was finally being treated for this stuff!
>
>It was great to read your eagerly awaited post!
>
>Joan
>>>>
>>>>--
>>>>

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