Re: Surgeons
From: Dawn (whity631@yahoo.com)
Mon Sep 19 20:20:11 2011
No, your not crazy!!! The docs that don't believe you are crazy! If your
present doc won't make the referral, find one that will. It took me along
time, many years to get good doc that believed there was something wrong and
that it was all caused by the adhesions. I guess it is true that adhesions ,
the tissue itself doesn't cause pain, BUT what the adhesions DO does-if that
makes any sense. I've been laughed at as well, and any new docs that I've
had to see for things don't believe me so what I had to start doing was
taking copies of my surgery reports with me and giving the new doc a copy so
he/she could read the report for themselves and know just how bad my
insides are, that I'm not just making it up. My "good " doc that does
understand and knows how severe my guts are I asked to write a letter
(actually I wrote it he just signed it) giving a brief synopsis of my
problems and I give them a copy of that too.
It seems once they see things on actual doctor letterhead they start to
believe better and I don't have to try and explain so much and have them
look at me like I have three heads. lol
It's very difficult to live a life with this terrible problem. It seems just
about when I try to learn to live with one problem something else goes
wrong.
I am thankful for this group, to know there are others that do understand
what I'm going through.
My last surgery a barrier method was used (don't recall which right off) and
I don't know that it helped any, it sure as hell didn't stop any of the
pain. Actually, or whatever reason after the surgery I developed a fever of
107 degrees with supposedly nothing found as to why, after days infectious
disease was called in even though they couldn't find the infection and I was
pumped full of tons of antibiotics for days, which did finally lower the
fever down, not to normal but where they discharged me after twelve days. I
still think it had something to o with the mesh or whatever it was they used
and my body trying to reject it in essence. I don't know, none of it made
any sense.
I hope you find a doc that will listen, that seems to be a big key in at
least being able to get some help. Good luck!
Dawn
Sent from Dawn B's iPad
On Sep 11, 2011, at 9:14 PM, "IAS Admin" <tracy.joslin@adhesions.org> wrote:
> Sender: piranalu@aol.com (Kim Anderson)
> Subject: Surgeons
>
> My history- started with endometriosis in my teens, and 20s -causing
> infertility.
> Now in the last 2 years I have had 2 bowel surgeries due to obstructions
> from diverticulitis.The last surgery- the colon-rectal surgeon took an
> extra 3 hours to do lysis of adhesions, just to be able to get to colon
> do the surgery. Of course I have have chronic pain also- mostly
> pelvic-groin.. that has just basically put my usual activities on hold.
> Now I have a large abdominal incisional hernia..., and several smaller
> hernias below the big one.
>
> A General surgeon- head of the department, at well-known teaching
> hospital. Want's to put layers of mesh over and under this hernia- I
> said- "lets hold off on that! I don't want more adhesions- I already
> have chronic pain." He actually laughed at me- "pain from adhesions?- I
> don't think so".
>
> Can anyone tell me if surgeons laugh at them- Why would they do that?
>
> I've asked 2 doctors for a consult to the pain clinic. My PCP, and
> behavioral medicine (Of course I'm depressed now too!) They do nothing-
> and a MD referral is needed for the pain clinic-
>
> You can bet- I'm passing on this "mesh" surgery.....it's elective- and I
> guess I could get another bowel obstruction with the hernia- but I'll
> deal with that in the future if it happens.
>
> I lost all trust in physicians. It's not a bright future.
>
> I just saw a post= mentioning mesh/hernia surgery.
> I thank all you who post here- so I know I'm NOT crazy.
>
> What should I do?
> ---- With these doctors?