Re: toni adhesions and pain

From: Janet (
Thu Feb 3 08:56:57 2000

At Thu, 3 Feb 2000, toni welsh wrote: >
>>>>to do it laparascopically or did they have to cut? Ginni
>What you just said, Janet is the same thing they had trouble with me,
>they could not see anything, and could not ggo through the adhesions,
>they are so thick. So a month later I had to go in for a laparotomy.
>Two times being put to sleep, so I feel like the drs all have told me
>this, so why put yourself through an extra surgery.
>I have been feeling so bad, as far as the painI had for 4 days, seems
>better today. For two days I could not touch the right side , and if I
>happened to lean on that side when I was trying to cook or do some
>dishes, by the sink, I went through the ceiling. These episodes are
>getting worse, I am bragging and as I write this, now I am having bad
>stabbing pains in my left side , bot I 'll tell you this is so
>aggravating, and seems I STILL run into some drs who do not believe
>adhesions cause pain, and the last time I saw my GI dr, I told him well,
>then someone better find out why I am in pain.
>I ahve benn so afraid to call my gyn about his, he has found a surgeon
>who would assist the gyn, general surgeon, knowing I want my gyn in the
>OR too. To tell you the truth now I am SO SCARED to have anymore
>surgery, you read about the two girls who have died over ARD, the last
>one I read she insisted on surgery, and she died, I am VERY scared, but
>it hard to live like this sometimes. I am so confused now. Why have
>things acted up again, and it feels like gas gets trapped on the side ,
>and will not come out, and then to pain gets worse. I still think that
>some of these episodes are partial blocked. They just hurt to bad, and
>I take meds that SHOULD help, and I told my husband the other night, I
>was in ALOT of pain for those days.
>I do not understand why the meds DO NOT help those pains whn
>when I get like that! I am not taking Ativan too much, janet, I know
>what you mean I was on Xanax for years for painic attacks, I hated
>getting off of those, so I put the Ativan up in the cupboard I am not
>taking them, and thank you for caring. I hope you all are feeing okay!
>Love to all,

Dear Toni, I remember writing to you a couple of months ago and we realised we were in the same situation.

I'm so sorry - you seem to be at the end of your rope with this continuous pain.ARe you working at the moment? Ive been off work now since last August because I found I just couldnt function anymore. The pain on my left side comes and goes, cos I suppose Im resting alot.But when its there - i tell you I could putt my hair out. I am really dithering about further surgery.But like you I have trouble with just carrying on.My life is on hold.Is that how you feel?

You dont have to go through this alone.You can always email me direct at and we can talk some more. Please forgive my bad memory - but have you had a hyst as well? Only I have joined hystersisters which is a really supportive group for women who have had hysts.

Hope to hear from you love Janet

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