Believe me, I will keep everything you said in mind.
hugs, tinky
At Sat, 14 Jul 2001, marianne bolding wrote:
>
>That's exactly the way it works...we're each so
>different and at different stages with
>adhesions...added w/ different ailments...of course,
>you know what your body needs...all we can do is offer
>ideas...some work for some and not for others. You're
>stage of endo is not what they consider
>moderate...sounds like. I merely reference a book
>I've been utilizing...hoping it "may" be able to
>benefit someone as it has me. It's purely based upon
>diseases and the nutrition we lack having those
>diseases. It's the phobia I have that I caused my
>prob through stress and years of bad treatment to my
>stomach. I'm very extremely focused on weight gain
>and nutrition...so, if I sound like a know it all...or
>even seem pushy...it is never my intent. I'm glad you
>noticed the efforts I put in...as I do care about
>everyone here...and I feel it's all I can provide
>through e-mail...in person I'd want to simply hug all
>of you and help take care of everyone who feels alone,
>or, is in fact alone. I have no kids...it's the
>natural nuturer each of us women have. To just want
>to take care of someone. Love you all
>--- tinky <anonymous@medispecialty.com> wrote:
>> Thanks for your ideas. SInce I have already gone
>> thru menopause, I do
>> not need danazol - or worry about iron (which also
>> can cause
>> constipation FYI) -- and I have to avoid soy because
>> the smallest wee
>> bit of estrogen stimulation aggravates the endo in
>> me. Which believe it
>> or not I have al the way up to my armpit!!!!!! I am
>> lucky though, since
>> my last series of surgeries I have very little pain.
>>
>> My diet is good, and this problem with the bowel has
>> been extremely
>> consistant for about 5 years, with little variation.
>>
>> Given that i have such a problem with bowel
>> adhesions, I am probably
>> going to try the low fiber routine, makes sense. As
>> far as dealing with
>> endo with diet -- my only major insight has been to
>> avoid soy products
>> and of course estrogen itself as mich as possible.
>> I do not eat dairy
>> either, but that is because I am allergic to it! I
>> have been since i was
>> born.
>>
>> THanks for your efforts. This is such a complex
>> situation, I feel
>> blessed to have found this board and hear others
>> ideas. :)
>>
>> Thanks Marianne!
>>
>> At Sat, 14 Jul 2001, marianne bolding wrote:
>> >
>> >Caffeine!!!! Not good to me...it aggravates bowel,
>> >adhesions, and intestinal problems immensely...stop
>> >the coffee...I used to have a coffee and
>> >cigarette(shame on me) to help with my bowel
>> >movements. I've changed this habit...I know wake
>> up
>> >to an acidophilus pill on an empty stomach. I
>> usually
>> >go within the hour. I was a heavy soda and coffee
>> >drinker. I was asking my husband yesterday...is
>> there
>> >"one" benefit that coffee can give us...just
>> one...we
>> >couldn't think of any...can you? (not counting it
>> >tastes good. it wakes me up, or it keeps me
>> >regular)...ie: one glass of wine clears the blood,
>> >there's a benefit...women with endo have a tendency
>> to
>> >have more food sensitivies. Such as butter, dairy.
>> >fried foods, foods w/additives, red meats, even
>> sugar.
>> > And if you have recently started taking meds they
>> say
>> >symptoms will worsen temporarily. And I researched
>> >the fiber intake for you...it states exactly..."A
>> diet
>> >rich in soy and fiber is very important in managing
>> >endometreosis". So fiber is good for you. Also vit
>> B
>> >w/B6, vit K to avoid blood clots, zinc tablets for
>> >tissue repair and immune system and vit c, top it
>> off
>> >with a multi-vitamin. Are you iron
>> deficient...many
>> >women w/endo are. Check w/doc as iron is bad for
>> the
>> >intestines, but yet needed if there is a
>> deficiency.
>> >Are you on danazol? I hope any of this helps.
>> >--- tinky <anonymous@medispecialty.com> wrote:
>> >> Hey all,
>> >> What a great board. I have what seems to be a
>> common
>> >> problem here.
>> >> I have stage 4 endo, and tons of adhesions from
>> >> previous surgeries.
>> >>
>> >> The only ones that bother me seem to be (I
>> figure)
>> >> around the right
>> >> ovary area (whichis no longer there). Here is my
>> >> question(s):
>> >>
>> >> In order to move my bowels each day, I have to
>> get
>> >> up, drink coffee and
>> >> sit and relax for about an hour. if i miss the
>> >> relaxing part, the day
>> >> is shot, and after 2 days, I use a laxative (one
>> of
>> >> those intestine
>> >> irritating types). I occasionaly have stools
>> with
>> >> darker parts which i
>> >> figure might be old blood. This started after my
>> >> last surgery, and i
>> >> was on a low fiber diet for about 6 months till
>> that
>> >> mostly cleared
>> >> up....
>> >>
>> >> Now this would be great (relatively speaking) if
>> I
>> >> did not have like a
>> >> real life and could sit and relax for an hour
>> each
>> >> morning -- which I
>> >> suppose i could do, but it sort of stinks to make
>> it
>> >> the central part of
>> >> my life.
>> >>
>> >> SO: do you guys have experience with this sort of
>> >> thing getting worse?
>> >> I eat a fairly high fiber diet, which from
>> reading
>> >> this list today i
>> >> realize might just be stupid.
>> >>
>> >> Am i looking down the barrell at an obstruction?
>> ANy
>> >> ideas? oh, and from
>> >> my last surgery 3 years ago, i went thru
>> menopause,
>> >> so my endo is
>> >> stable.
>> >>
>> >> thanks in advance for your thoughts and
>> >> opinions!!!!!
>> >>
>> >> -tinky
>> >>
>> >> http://www.adhesions.org/forums/listcmds.htm
>>
>> http://www.adhesions.org/forums/listcmds.htm