Re: Lonely SBS

From: Karla N (ifirgit@yahoo.com)
Thu Apr 4 07:52:02 2002


What is SBS?

--- "Traci (woman)" <genz@co.dane.wi.us> wrote: > I have had the SBS since 8/00 and live in Wisconsin.
> I feel like I'm
> the only one that has SBS in Wisconsin. I would
> love to have a pen pal
> that I could share my frustrations, problems,
> etc....I do have great
> support of my medical staff but sometimes I want to
> talk to a person
> that already has SBS.
> All these adhesion problems occured when I had
> lapscopy (spell?) in 1993
> to remove my uterus. Then I developed a bowel
> obstruction. That was a
> piece of cake surgery. Then in 1999 I developed a
> tumor on my ovary and
> they removed both and saw alot of adhesions and
> hoped they wouldn't give
> me trouble. A week later I had 5 resections, 9
> hours long surgery and 6
> weeks of hospitalization and plus 3 other short
> stays in 1999. I was
> still in pain & vomiting the surgeon I had at that
> time basically told
> me there isn't anything wrong w/me, etc...After one
> & half years living
> w/that, I saw someone else for a 2nd opinion and
> this surgeon couldn't
> believe what she saw. The adhesions was from the
> upper colon to the
> rectum. I lost my ileum and only have 4.5 feet of
> small intestine left.
> The surgery was a 10.5 marathon. My parents were
> told I may not survive
> this surgery. The surgeon told my parents that if I
> would have would
> waited another week, I would have died. AFter one
> week of ICU & 5 weeks
> of hospitalization, I went home w/TPN, tube feeding,
> etc...I was on TPN
> and tube feeding for 5 months.
>
> The diet was the hardest thing I had to go through.
> I have always hated
> dieting and it was a hard adjustment to it. It took
> me 6-8 months
> before I got the hand of it and I had to learn to
> cook too. I was able
> to eat cheeseburgers, fries, pizza and everything
> else I got sick and
> had this surgery.
> I used to be very active, going out w/friends,
> biking, jogging,
> traveling. I still go out w/friends but as far as
> exercises, it has
> been zipped! I tried jogging but I always ended up
> running home to the
> bathroom! I'm afraid to be around places that don't
> have access to the
> bathroom. I'm having trouble w/my iron and already
> had two blood
> transfusions to get up iron up to level.
> Anyway, it would be nice to talk to someone and
> share stories or swap
> ideas/suggestions. Love to hear from you.
>
> --
> Traci
>
> http://www.adhesions.org/forums/listcmds.htm

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