why is it so hard?

From: IAS Admin (tracy.joslin@adhesions.org)
Mon Apr 27 19:40:24 2009


From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of JMoore4877@aol.com Sent: Saturday, April 25, 2009 1:46 PM To: adhesions-request@adhesions.org Subject: Re: why is it so hard?

I have sent emails to the show the Doctors.  I will also send to Oprah.  We stay mad we stay loud!   In a message dated 4/24/2009 6:24:29 P.M. Pacific Daylight Time, tracy.joslin@adhesions.org writes: Sender: sewilson@ameritech.net (Susan) Subject: Re: why is it so hard?

Katie,

I don't care, I see how ignored I am being.  I went on Oprah.com and suggested this as a show she should do.  I will go onto every show's website and suggest this as a show they should do.  What, we can go into the military and fight but we can't be heard about a serious medical issue? Baloney!! Girl I am fired up and am really angry.  There is plenty of information about these, I read a 100 yr.  old article written about adhesions written by a male dr.  I am going to make sure cleveland clinic knows about this website and the information available regarding this issue.  I am dropping weight like crazy now and I am sick all the time.  All the doctors tell me I am as healthy as you can get.  I'm pissed!! Together we can raise alot of heck in alot of places.  I wonder how many women like me suffered and didn't even know what they are suffering from? How many more people are out there with this problem?

Susan

At Thu, 23 Apr 2009, Katie wrote:

>
>Susan,
>
>You can be as loud as you want and still get ignored.  It's been
>happening to me for over 2 years now.  Most doctors just don't give a
>damn!
>
>--
>Katie
>
>At Wed, 22 Apr 2009, Susan wrote:
>>
>>I am having a first time experience with abdominal adhesions, in Jan.  of
>>this year I had not had a bowel movement for almost 6 weeks, I went
>>crazy.  I was in and out of emergency rooms, and have had a million
>>tests.  My family doctor mentioned adhesions, but every other doctor I
>>went to talked about my colon.  I just underwent the most awful tests to
>>see if my colon should be removed.  My colon should NOT be removed.  I
>>have finally called my sister-in-laws doctor because of something she
>>told me.  Her doctor mapped out the adhesions and if any of them give
>>her trouble her doctor is there.  I am praying I can hold on until my
>>appt.  I am really scared.  My Mom had endometriosis (sp?) for 20 yrs.  I
>>have been doing research on adhesions and you can die!!!!! Why, why are
>>we blown off about these? I feel like I have been laughed at by some of
>>these doctors as being silly! They had me doubting myself.  At my worst
>>point I really wanted to take a knife and cut into myself to relieve the
>>pain and bloating.  I have had a hernia operation, two c-sections and a
>>tubal ligation.  Is there any more of a hint as to what could be my
>>problem? The doctors ask me to pinpoint pain, I can't it's my whole
>>middle.  I feel like my c-section scars are attached to my ribs,
>>sometimes it feels like it's trying to pull my breasts and heart and
>>lungs down.  We women need to be much louder about this.
>>


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